Mental Health Awareness Week 2023 - Anxiety

The theme of this year’s Mental Health Awareness Week 

15 - 21 May 2023 is Anxiety.

The Mental Health Foundation, the charity which has hosted the annual Mental Health Awareness Week since 2000, explains why Anxiety is the chosen theme:

“Anxiety is a normal emotion in us all, but sometimes it can get out of control and become a mental health problem. Lots of things can lead to feelings of anxiety, including exam pressures, relationships, starting a new job (or losing one) or other big life events. 

We can also get anxious when it comes to things to do with money and not being able to meet our basic needs, like heating our home or buying food. 

Focusing on anxiety for this year's Mental Health Awareness Week will increase people's awareness and understanding of anxiety by providing information on the things that can help prevent it from becoming a problem.”

Andy, from North Powys, tells us what anxiety feels like to him, and shares tips 

which help him cope with anxiety in his day to day life.

To start off, could you give us a brief introduction to yourself and your situation?

I’m male - aged 63. I work part-time at a supermarket in Newtown. I have worked in a more intense, demanding IT job in the past, working in London, so my present job does not stretch the “grey matter”. Therefore, I have too much time on my hands to think and ponder over life, health and current news. 

I have struggled with depression over the last 13 years in Wales, being stuck in the house for many hours with not much going on. The "black dog" analogy and Silvercloud have both been useful to me, as is sharing with others that I trust and doing some volunteering and being part of a local church.

Tell us more about what anxiety feels like to you?

Anxiety is a feeling where my world is closing in on me. I don’t feel motivated to do anything or start anything new. It feels like I’m watching others having more fun but I cannot get enthusiastic about anything I am doing currently. I don’t look forward to doing anything and stop making any future plans.

What can bring on a feeling of anxiety in your experience?

My feelings of anxiety can be triggered by bad news on the TV, the weather, someone’s negative story or words to me, or it just appears out of the blue like random thoughts from nowhere. Sometimes they are nagging and recurring negative thoughts about my health or the future.

What helps you with your anxiety if you are at home alone?

I find it is helpful to me to limit the amount of TV news I watch to a short time, once per day. During Covid, I was watching TV news daily, and taking in every “blow by blow” announcement. This had a negative effect on my mental health. 

On big news subjects like the economy and wars and disasters, there is a constant commentary by journalists, who like to sensationalise every subject, dwelling on the negative side. I need to remind myself that what I’m listening to, is not fact, but comment or opinion. If I try and “wait and see”, and ignore it, it probably won’t happen (e.g. gas supplies exhausting and lights going off in winter in the UK). 

Having a faith, I do pray regularly, and God does take my cares and worries away. I find relaxing music (e.g. Christian songs by Hillsong) and reading the Bible (e.g. Psalms) soothes my soul and relaxes me when I am stressed or feel pain.

Cycling on the dunes at Newborough Forest on Anglesey

Tell us more about activities outside the home that can help with your anxiety

I like going out every day for a short walk with my camera, to maybe capture a new view or something natural like a bird or a flower in my favourite places like a park with trees, or along a river. Nature calms me and provides re-assurance in uncertainty. 

I also like to go out to a pub or a warm space, meeting people and socialising, to drink a coffee or read my book. It’s nice to see people and be out of the house. I like to go out for a motorcycle ride on a sunny day, as it is just me and machine in my space away from the hub-bub of life.

What was your experience of SilverCloud online Cognitive Therapy like?

I have found the "black dog" cartoon useful to me. It’s a very clear picture to me of what might be going on in my mind where the dark voice, or Black Dog, is speaking loudly to me. I sometimes find myself listening to it. The “black dog” is sometimes silent and sometimes barking away loudly and hard to ignore. 

I have completed the online Silvercloud course as my employer allowed me to have access to it for a limited time two years ago and I found it helpful and useful to me. Silvercloud (online mental health support) allowed me to study a Cognitive Behavioural Therapy (CBT) course online at my own pace and there was a personal guide allocated to me.

If the current Cost of Living Crisis has had an impact on your mental health, tell us how and why

Having time at home does mean that I feel the cold virtually every day. No one likes to return to a cold house. So, turning down the heating makes me feel “down” and putting it on and then looking at the smart meter also makes me feel “down” about the potential monthly cost of heating my house in terms of the gas and electricity bill. I have to stop myself constantly looking at the smart energy meter. Some people hide it away.

At the Menai Bridge, Anglesey on holiday

Which non-medical approaches work best for you when dealing with anxiety?

I find getting out of the house regularly helps me. I find activities like volunteering (e.g. driver for community cafe in the Covid lockdown period, and doing litter-picking as a Keep Wales Tidy Litter champion) and being part of a local church, attending large and smaller group meetings, helps me. 

I also find being outside in the natural environment, having a good book to read at doctor’s waiting rooms or in the pharmacy, or cooking a new recipe helps me. It is important to try something new from time to time.

Do you attend a support group, and if so what do you find beneficial?

I regularly work at a large supermarket, which provides laughs and lots of "ups and downs", but it has sustained me as a key worker allowing me to regularly get out the house three times a week, even during the lockdown Covid period. My workplace provides continuity, an income and a social life. 

I also find attending a weekly church meeting on Tuesdays is helpful to me, as everyone is a similar age at a similar life stage, sharing with each other how they are feeling about their health concerns and family worries too.

What is the one key thing which really helps you if you’re feeling anxious?

Try to tell yourself – “What if it doesn’t happen?" Or, “I’m better off than some others,” or “it might not be as bad as I have imagined, so wait and see”. Avoid over-thinking or worrying, as it achieves nothing and is damaging to your health. I am a “Work in Progress”. This is an ongoing battle as I am an anxious person. I am not “out of the woods” on this and there is always room for improvement and the need to seek help and share more with others.

Views from the motorbike above Newtown

Many thanks to Andy for telling us how anxiety affects him.

You can find support for anxiety in many different ways as Andy pointed out. 

Here are some links to sources of support in Powys:

Silvercloud CBT

Anxiety UK

Mental Health Foundation - tips for coping with anxiety

Mind - videos on anxiety & tips to help

How playing Pokémon Go helps my mental health

by Mark Evans aka wildfairyboi 

As a sufferer of anxiety and depression, and suspected Post Traumatic Stress Disorder (PTSD), I spend a lot of time alone in my room. I find it extremely hard to start a conversation and when people begin to talk to me I get dizzy. My heart begins to race and I find it hard to catch a breath so I kinda shut off to the world. To some I might seem extremely ignorant. But this is not the case. I would love to be able to just walk up to someone random, introduce myself, and have a good old chat...

However, since I can remember I have always freaked out at the prospect of meeting someone new .. Some days I even find it hard to talk to people I know very well including my own family so I'm always looking for reasons to give me confidence to leave my room... 

As a 90s baby I grew up watching Pokémon and I loved it throughout my childhood…. And, not gonna lie, I still watch it to date… So when Niantic released Pokémon Go I was really excited to give it a go to the point I ordered a new contract mobile specifically to play... I was so taken in to the game catching all my favourite Pokémon I started going out all night when there was nobody around to play the game. I started to go out nearly every night. I walked around town and the lake every day for nearly a year.

Then I got ill and also had to look after one of my mates so I stopped playing so much. I actually didn't pick up the game for nearly 9 months as I was with my friend every day trying to fix her life up. Or I was really sick myself, and in and out of hospital. So I stopped my evening walks and began to spend all my time either at hers or hiding in my room again as I slowly got more sick. This made my depression and anxiety worse to the point I stopped going out again at all.

In the last 4 months I have picked up my fone and begun to get out walking again as I convinced my mate to do the same. She also got a fone to come and play Pokémon with me. So we began walking round in the evening, then we decided to start doing some of the daytime tasks on the game including meeting other players. I noticed my anxiety was still there but having Pokémon to talk about distracted me enough to get into conversations about it.

We met more people to share Pokémon info and tips with and began to get invites to X raids for a chance to catch legendary Pokémon ... So I started to go and meet random groups to play Pokémon although still feeling anxious .. Playing Pokémon Go gave me a reason to meet up with these random people and a reason to talk, so I slowly gained confidence to the point I'm now out most of my day playing... I’m either walking round town or the lake several times hatching eggs or walking Pokémon or even just chasing cool Pokémon on the near by. 

I'm even trying to get groups of people to come and meet me to help at some of the Pokémon raids and awaiting any one asking for help on the chat. If anyone asks for help I'll try to get wherever the raid is. 

So I've gone from having no confidence and staying indoors all the time to walking round the town for hours on end not wanting to go home some days. I’m meeting lots of new people and re-meeting old ones - all out playing Pokémon. I noticed there's quite a few really anxious players but all eager to come play when they can. 

S is another regular Pokémon Go player locally who has been 

struggling with her mental health. She says: 

“Playing Pokémon Go has literally changed my life.”

Big thanks to Anne Woods who is a Participation Officer in our team but also a very keen player of Pokémon Go. Anne has been playing since the day it started in the UK. She very kindly created the infographics with the Pokémon Go basics for the newbies amongst us...

Type 2 anorexia – my experience

This week's guest post is by a young person living in Mid Powys.

Perfectionistic, body dysmorphic, obsessive and depressive are accurate words to describe anorexia. Six months in a psychiatric hospital suffering from the disease has proved this beyond question. However, the experience also revealed to me two different manifestations of the disease - characterised by varying degrees of the traits above:

Type 1, where the sufferer has a severely distorted view of their body and therefore exercises and starves themselves in the pursuit of looking ‘normal’. This is what most people perceive anorexia to be about, but I (and others in hospital) didn’t identify fully with this and hence believe there’s a second type. 

Type 2, where an obsessive routine of eating and exercise develops in order to avoid irrational consequences despite perceiving oneself as normal (perhaps slightly overweight). Here, the consequences could revolve around any aspect of your life but mainly around weight gain where the goal is to be thin - better than normal. Hence, those who identify with the second type are likely more perfectionist, academic and hardworking. However, they’re probably more at risk (due to these underlying personality traits) as it’s probably more dangerous to act on self-perfection than on self-perception.

The obsessive, perfectionistic roots of type 2 affect many aspects of the disease making it clearly distinguishable from type 1. In type 2, food itself isn’t an issue, the calories are (hence half the hospital chose to have liquid supplements and the other half had food despite being equal in calorific intake). Exercise is also more of an issue in type 2 than type 1 as it becomes built into a rigid routine and must be done to relieve anxiety (as opposed to accelerate weight loss). Type 2 anorexics are also more likely to be deceptive and compete with other sufferers to be perfect in other people’s eyes rather than just in their own to become the ‘best’ anorexic they can be. In this respect access to online material and social media create a competitiveness which likely makes many people’s condition worse. Finally, in type 2, anorexia cannot be separated as an entity from the sufferer (hence getting to draw/name it isn’t effective despite working well for type 1 anorexics). This is because for them the disease takes advantage of their personality traits and becomes an extension of them.

We should use our understanding of each type of anorexia to personalise the otherwise universal treatment plans. Personalised medicine is a hot topic in modern medicine. Gene sequencing and editing has allowed us to choose the treatments which we know will work best on patients. Why not extend this to anorexia?

Of course, the line between the two groups is blurred, but there are many instances where placing me into one of these groups would’ve helped mine and other sufferers’ recovery. Catching it early will inevitably reduce the likelihood of the disease worsening but recognising when further intervention (from Child & Adolescent Mental Health Services to psychiatric hospitals) is necessary is just as important. Taking away the choice by involving professionals is often the only way people too far into the disease can recover and increase their weight enough to correct the depression and distorted thinking associated with anorexia. 

Also, the incentives for recovery are blocked by body image or compulsions for type 1 and 2 respectively. We could therefore target these blocks differently for each type. Classical conditioning is used to treat Obsessive Compulsive Disorder (OCD) and involves patients doing what it is that causes anxiety (or not doing it in the case of a ritual). After being in a better mentality to do so, I decided to try it. I went home over a weekend and didn’t sneak off and exercise at all. That weekend was the only time my weight dropped during my whole recovery. My anxieties were practically gone from this point onwards. 

Finally, the qualities associated with type 2 sufferers can be redirected from weight loss to something beneficial. For me, I became very academic which allowed me to preoccupy myself and give enough incentive to remain fully recovered. Incentive is the key to the cure. Access to mental health services is the key to prevention.

After sharing my thoughts on service provision I’d like to talk about what it’s like to have been a male anorexic. I imagine that you’ve pictured a female through reading this blog and hope that you’re somewhat surprised that the author, the sufferer, is male. I wasn’t at all surprised to be told I had anorexia - I knew about the disease and could tell things weren’t right especially after comments from almost everyone I knew expressing their concern. I have a female twin and understandably my mother has since admitted she was always conscious of the fact that she could become anorexic. These were probably unconscious thoughts felt by everyone around me - I wasn’t expected to become anorexic and hence I was allowed to get progressively worse without it crossing anyone’s mind. I’m sure that this allowed my mind set to change and my weight to drop enough that the anorexia had developed into something that couldn’t be solved without professional help.

Unfortunately, I was taken to the GP surgery twice and both times was told that my weight wasn’t low enough to cause major concern. I was, however, referred to CAMHS on the second occasion. To an anorexic this was like being told you’re not thin enough. Furthermore, the naivety of the doctors to accept all that I said (that I eat lunch and have snacks, only exercise every couple of days and am still sociable and happy) prevented them from assessing me on anything bar the weight-age percentile I was in.

As a boy my original motives were also different to those of girls. At 7 and a half stone, I was plump and had innocent comment from friends and family saying the same. I thought I should try and lose some weight and gain some muscle (as mentioned, the muscle gain I wanted was impossible for a 12 year old). I started with cutting out food and exercising more and liked the results so continued doing this to greater and greater extents. The weight loss and routine consumed me - I lost friends and my confidence, my work suffered, my hair began falling out, my skin flaked away, I was constantly cold and remember dreading the thought of standing or walking because of how faint they made me feel - this is certainly a mental and physical disease. 

Waiting almost a month for an appointment with CAMHS gave me the time to rapidly worsen. I was lucky to have an exceptional psychiatrist - the best of many I’ve had since. However, weekly appointments with her were of little benefit and my weight continued to drop. A paper cut in class one day caused me to faint and have a small seizure which prompted my removal from school and a two week bed rest. Another month of this saw little improvement - I didn’t want to get better. My family and I were becoming more and more depressed and with all of us finding life unbearable, I was taken to a psychiatric hospital where I was the only boy. 

By removing the choice of recovery, my weight rapidly gained and I began to see more clearly - food really is the ultimate medicine and choice is its antagonist. After six months I returned to school where everyone supported me through my last steps. It took almost a year of going at my own pace before simply wanting to be normal gave me the incentive to recover - I came off my meal plan, started socialising, working hard and enjoying life again. Once in the healthcare system being male didn’t affect anything, however - expect a man as you would a woman to develop an eating disorder and don’t shy away from talking to them about it. 

There’s a reason anorexia in males is becoming more common. Social media has recently become inundated with pictures and quotes encouraging men to love women with curves and promoting curves by redesigning children's characters (particularly Disney princesses and Barbie) to reflect more realistic figures. Unfortunately, there is no male equivalent. All I ever see are pictures of ripped and good-looking men, one even quoting “women like butts too”. This sends the message out that men must love overweight women but that men must have a knife-sharp jawline, a sculpted body and of course, a peachy bum to be considered equally attractive. Its reasons like this that Body Dysmorphic Disorder is becoming worryingly common especially in males. 

We need equality to favour all genders - encourage everyone to be happy with how they look as long it’s healthy. I’ve gained so much from my experiences and have helped many to overcome their problems but the horror of anorexia and how much of life it affects is only known by sufferers and their families. It’s not a route that social media should inadvertently encourage people to go down  - we’ve ensured this with women but I feel men are increasingly led along this path due to the lack of society expecting them to do so.

Postscript from our guest author:

On the last day of an eventful year, I need to say this. The expectation of men to be strong and brave - to be masculine - is quite literally killing people. It's this expectation that allowed me to fly under the radar when my mental health suffered and it's this expectation that has killed four silently suffering but definitely loved friends in the last month alone. We need to be so much more aware of the hurt that people around us are feeling and not hesitate to talk to them about it. It really can be just a few words, a quick check up or a smile that can break that depression and give someone reason to think about the future which is otherwise non existent in the mind of a depressive. Please, have a Happy New Year and make this your resolution so that in 2017, good people aren't hurt by their mental health.

Many thanks to our guest author for sharing his experiences of anorexia. There are several charities specialising in providing support for people with eating disorders. These include:

B-eat - the UK's eating disorder charity

Anorexia & Bulimia Care

Seed - eating disorder support service

Men get eating disorders too

If you know of others, let us know in the comments box below.

Active Monitoring - Mind working with Powys GPs

Just last month at the PAVO Conference, which focused on Prevention and Early Intervention, we found out more about a new initiative at Brecon and District Mind when Service Director Val Walker spoke at the Mental Health Conversation. Active Monitoring provides support to people who visit their GP with symptoms of common emotional health needs including stress, anxiety and depression. The service aims to increase wellbeing, self-esteem and confidence, and reduce the likelihood of needing to access further support relating to a person's emotional wellbeing.

The mental health charity Mind describes Active Monitoring as: "a psycho-educational programme designed to provide early intervention provision within the Primary Care arena. With growing demands on Therapeutic Services resulting in increasing waiting lists it is getting more difficult for people to access the help they need in time. This role involves working directly from a GP surgery delivering the Active Monitoring programme. The service complements/replaces the ‘watchful waiting function’ and proactively works with individuals on agreed pathways to support early intervention via a facilitated self-help model."

Elizabeth Bogunovic

Brecon & District Mind works closely with the GP cluster in South Powys and Red Kite Health Solutions CIC (Community Interest Company) to deliver the Active Monitoring service.

Elizabeth Bogunovic is the Mind Active Monitoring Practitioner delivering the service for Brecon & District Mind, and she tells us more about this innovative way of working:

It was when I began volunteering for Merthyr and the Valleys Mind that I became aware of a service called Active Monitoring. The more I heard about it, the more intrigued I became so I sat down with Nicola, one of their practitioners, who explained to me the ethos behind the product so to speak. From that point on I was passionate about the possibilities an early intervention, self help service could offer people and considered the time a few years ago I found myself stuck in my own ‘mental health mess’, and how it may have changed the course I took at that time. I am convinced it would have helped me to recover a lot quicker than I eventually did.

Now I am delighted to be the Wellness Practitioner delivering the service for Brecon and District Mind, based at the Haygarth Surgeries which cover the areas of Hay-on-Wye, Talgarth and rural villages around here. I have been part of the Brecon Team since August 16th where I began by getting to know the area, the people and the surgery set-up, before heading off to Oldham to have some excellent training from Mind which fully prepared me to begin working with patients on September 8th.

The Active Monitoring Service consists of an initial ‘drop-in’ session where I meet the patient referred to me by the clinical team for a brief fifteen minutes and then, a further five more sessions. During the time they spend with me, they complete the GAD7, PHQ9 and Warwick Edinburgh Wellness evaluations at the beginning, middle and end, and choose one of six workbooks or pathways to engage with. These workbooks focus on Managing Anger, Anxiety & Panic Attacks, Stress, Low Self Esteem, Depression and Feeling Alone. To complement these workbooks, I have at my disposal a selection of exercise sheets they can work with and some smaller booklets to help them. The initial feedback I am receiving is on the whole excellent and very positive.

The last few months seem to have flown by and I was surprised to notice today how many of my first patients have had their last sessions with me over recent weeks! It only seems like yesterday I sat with them, full of anticipation both for them and me, describing the service and inviting them to engage in it. I was delighted for one patient at our third session when she completed the same evaluations she did at her first drop in session to see a slight improvement, I remember feeling her pleasure almost as my own!

So far I have worked with 48 people -  all at different points of their journey through the service - many of whom tell me how much more aware of their feelings and emotions they are since starting work with me. This not only gives me some validation that Active Monitoring ‘works’ but an immense sense of achievement when someone starts to notice a change in themselves.

I have amazing support from the staff here at Haygarth, it feels almost like being part of a big extended family which makes it a pleasure to come to what is called work but what I prefer to call ‘doing something I love with financial reward’. Even more than that I am lucky to be part of the team at Brecon & District Mind who also feel passionately that Active Monitoring has the potential to offer people an alternative approach to mental health matters, one that really can make a difference in a person's life.

Brecon & District Mind believes that early Interventions are far more effective than waiting, and that prevention is better than allowing things to linger. "We want people to get help immediately rather than wait to get help, or for things to get worse". 

You can find out more about the Active Monitoring project on the Brecon and District Mind website. Contact Elizabeth by ringing 01874 611529 or email: activemonitoring@breconmind.org.uk

The Blue Boy

Our guest post this week is by a member of the new Llandrindod Autism Support Group which takes place monthly at Mid Powys Mind's Resource Centre in Llandrindod Wells.

Llandrindod Autism Support Group is a place where people are accepted for who they are and can be themselves without being misunderstood or unfairly judged for being "different".

We like to talk about what it's like to see the world in a different way from those around us and how we try to cope with the everyday world.

At the next meeting, on 11 November, we shall be discussing anxiety and what we do to reduce or avoid it. I would encourage anyone who is on the autistic spectrum, or who thinks they may be, to come along and meet others like them.

This is my story…

When I delivered my son Mark on the first of July 1995, I had no idea of the incredible journey I would take in learning about Autism and how differently I’d see the world 21 years later.

There was nothing particularly unusual about Mark’s first year and my wife and I settled into parenting our first child thinking we had it all worked out. The first indication that Mark’s brain was wired differently was when he crawled into the kitchen, put the palm of one hand on the oven door and just left it there. I pulled his hand away and the blisters healed quickly. What we now know are autistic meltdowns became common, especially in shops, and we became accustomed to withering looks directed at us by other shoppers as Mark lay on the floor screaming.

From about age four, it became clear that Mark didn’t understand other children – if they caused problems he would neither try to stop them or walk away. My heart went out to him – deep down I recognised this from my own childhood.

We had already decided to educate Mark ourselves and looking back we all agree this was the best option. It gave Mark the chance to learn with less distractions than in a class room and gave us the chance to make sure Mark’s social life was one he would benefit from.

When Mark was about ten years old, we went along to our own local group for children with Asperger syndrome and met other parents struggling with oppositional behaviour, meltdowns and problems coping with school. The groups supported each other by sharing their troubles and listening without judgement. There were also books to borrow and I read avidly about other parents' experiences bringing up autistic children.

There were unexpected things such as sharing interests in historic architecture and the paintings of Gainsborough with Mark from age six, and reading and discussing philosophy from age ten. Mark developed a passion for Jazz and we played most days until he started college.

What made life so difficult was seemingly compulsive oppositional behaviour which happened many times every day and drove us close to nervous breakdown. For example, he would not get dressed to go out, even to do his favourite things such as spending a day on the local steam railway, and as the time to leave got closer we became more and more frustrated and stressed and Mark got more resistant to our pleas. Imagine this behaviour in almost every situation and you might just begin to understand why autistic children and their parents need all the support and understanding they can get.

Embracing Individuality – a group for those on the autistic spectrum or those who think they may be – takes place on the second Friday of each month, 10.30am – 12.30pm at the Resource Centre, Mid Powys Mind, Llandrindod Wells, LD1 5DH. 

For board games, a chat and a discussion about what you would like to happen next.

For further information please ring Paul on 01686 440716, email paul.hostler1728@gmail.com or check out the Powys Autism Facebook page.

YAPS - Sharing the Voice

The Young Adult Peer Support Project, delivered by the mental health charity Ponthafren Association, recently received a welcome opportunity to help spread the word about its vital work. The YAPS project offers peer support mentoring to young people (16-25 years old) who experience mental health issues, by helping to give them a voice of their own in the development of services. You can watch a YAPS project video, and also find out about the amazing game which the young people devised where players try to access mental health services as if in the real world and experiencing mental distress. The team from YAPS tell us more:

Robin Green, YAPS Project

We were fortunate enough to be given a six month extension on the YAPS project with the aim of spreading the feedback we have received from those we have worked with over the last 3 years. In the time leading to the end of the YAPS project we have been focusing, and will continue to focus, on tackling the more sizable and historically challenging issues we have been told about while working with young people: namely that of respect and communication. To address these concerns we have been feeding back to the service providers in the form of presentations and workshops which will be followed by more in the coming weeks and months. The aim is to educate and inform the service providers on the needs and concerns of the vulnerable people the YAPS project has come into contact with. 

Most issues reported to us that are not those of individual circumstance focus on the amount of respect, empathy, and understanding (or lack thereof) that people feel they get from services or the individuals within them. This often comes down to either poor ability to listen to or understand the individual in question, an inability to encourage and support an individual who may struggle to voice their concerns themselves, and/or a restriction on the amount of time any individual can get to explain themselves effectively. More often than not it is a combination of any or all of the above. Our hope is by sharing with other organisations what we have learned from young people’s experiences, we can disseminate their voice out into the community to help change the way services operate and to help make them more accommodating to those vulnerable people who need additional support. 

To try and tackle these seemingly common instances, we hope to speak with as many service providers as possible about the importance of truly listening and giving time to someone who needs it, even if it’s only five minutes extra. We have so far delivered what we’ve learnt to over 120 individuals representing more than 15 organisations and we remind service providers that “...when a young person comes for help, they are often scared: you might know what’s going to happen next, but they don’t.” In response, young people have suggested slightly longer meetings, more invitation for the young person to control the conversation, or a box on a form to tell the organisation in advance of any anxiety or depression that might get in the way of the discussion. Depending on the service being provided, resolutions to these problems may vary but we invite service providers to explore the possibilities. 

The feedback we have received so far from the events we have attended has all been very positive. Several people have come forward to say what we have spoken about has really resonated with them on a personal level and others have enquired about how we can support their organisations further in the future so they can support their own communities more effectively. While for others we were able to offer a perspective perhaps service providers often forget: as one person wrote on twitter, “The YAPS game provides a fascinating insight into the experience of young people needing mental health support.” 

One young person once told us that: “It’s sad that sometimes it’s the services we use that make us feel bad for accessing them.” None of the young people we have met have ever seemed to display any sense of entitlement for a service; instead they often feel scared, embarrassed, or guilty for accessing certain services and this should never be the case when someone needs help. We aim to see several more important service providers before the end of our project to try to reduce the number of young people who feel devalued and not welcome in their search for the help they deserve.

The Young Adult Peer Support (YAPS) project is one of the One Powys - Connecting Voices projects funded by the Big Lottery Fund. You can find out more about these projects by contacting Barbara Perkins, tel: 01597 822191 or email: barbara.perkins@pavo.org.uk

Thank goodness it's Friday in Knighton!

This week's guest post is by Doreen Matthews - a member of the thriving Knighton Mid Powys Mind Friday group. It was written at the height of summer 2016.

I love Fridays. So say the members of Knighton Friday Group.

We meet as friends, share stories and experiences of our lives and talk of what our week has been like. The group is so important to us. Life for most of us is not easy, events may have happened to us which cause anxiety and depression, but one of the big things in life is loneliness.

I met a friend who I have known for many years, and I was asked to have coffee. I was in a hurry, but I did stop and we talked about many things. The comment was: “My world has got smaller; I seem to have lost confidence, so find it hard to live my life, and feel rather worthless.” This person has tried to find help but does not like groups and when seeking help it has not really worked. I could not find answers, but I did listen and give gentle understanding. As we parted the remark from this friend was: “I feel so much better now that I have met you today. I always feel better when I meet you.”

The comment: “My world has gotten smaller” has stayed with me. I thought my world had gotten smaller too since my husband died. I have lost so much confidence, and if I did not make the effort to go out and meet people I would end up a very lonely person.

Friday Group has been so important and good for me, and I have been a member of Mid Powys Mind for 15 years and I have learnt so much from the activities. Doing a craft and being creative is so good for the brain. I feel more relaxed and my spirits uplifted. It takes me out of my casual domestic world.

Over the years I have seen members come and go. We have had our highs and our lows, sometimes despairing as to whether we can go on. Something always happens. A new member comes along - a new friend and we feel encouraged. I do wish people would realise how special and important they are to the group - I always like to see who is coming in through the door.

When someone comes along for the first time we know how hard it is for them to walk into the room. First impressions count and we can make or break at that first meeting, so we have to be careful how we deal with this. When people ask us “how are you?” the usual answer is to say “I am fine, very well”. The truth is in many cases they are not fine and sometimes want to talk. We must remember to give them the chance to talk, but with our own busy lives we tend to just hurry along. A nice smile can do wonders; a cheerful considerate person can make a difference. A nasty remark will put people down for hours.

Earlier this year we were told there would have to be a cutback due to lack of funding. We took on the running of the group ourselves straight away, with involvement from Mid Powys Mind. We all put a little extra money in to give us a working fund, and the Rotary Club gave us a generous donation to keep us going. We used some of the money to buy season tickets to The Whimble Nursery Garden. The tickets allow a member to visit the garden whenever they want. It is a place of beauty which is a natural therapy to make us feel better. We are using the gardens for some of our meetings and our next visit will be reading poetry and taking in the scents and colours of this lovely garden. We will have tea and cake and perhaps buy a plant. Walking through the wild flower meadow on our last visit with friends made us feel we were in another world. We had a visit to Monkland Cheese, of course we all now know how to make cheese, but we haven’t got a cow so we will leave it to the experts!

Some of our activities this year have included: chalk painted wooden spoons, making pretty boxes, woofing down homemade rhubarb and strawberry crumble, and cream gateau, and last week we made raffia mats which resembled Hobnob biscuits. Oh yes, we love our crafts. We really enjoyed “Havin’ A Laugh” with the comedians, they found us very comical; we ladies taught them a lot about life.

We felt, as a group, that we would like to reach out to others and it was decided we would make little posies for the Queen's 90th birthday. The result was breathtaking when we looked. Our work, arranged in baskets, was then taken to Cottage View Residential Home. The shades and perfumes of roses and sweet williams just gave off a feeling of joy and happiness. We had collected so many flowers and the happy “buzz” of busy bees being creative made me just stop and listen to our ladies. I thought of how happy everyone sounded, we were friends together, so contented in one another’s company. We all went up to Cottage View Residential Home and presented each resident with a dainty bouquet as we all sang Happy Birthday to the Queen. The feedback from the home let us know how glad they were to have us there, and we hope to return again.

The group has become very strong and we are getting new members. Everyone is so enthusiastic, putting in an effort to make things work. “We make our motto, we can achieve anything”. I think we can be proud of ourselves, and we are becoming noticed in Knighton.

We are now looking forward to an afternoon picnic at Aston-on-Clun on a member's lawn. Then we will be dancing with Powys Dance, we just love that! Our imagination makes us swans, sugar plum fairies, salsa dancers, fashion models or whatever we want to be.

The great thing about our group is that we are friends who care about one another, friends who laugh and have fun.

The Knighton Friday Group meets every Friday 1 - 3 pm at St Edwards Community Room, St Edwards Close, Knighton. 

If you would like to find out more about the group, which is supported by Mid Powys Mind, please ring 01597 824411, or contact Nic Williams by emailing: vo@midpowysmind.org.uk

CAMAD's Pathways Project in Machynlleth

This week's guest post is from Jeremy Richards who works as the Pathways Co-ordinator at CAMAD - Community Action Machynlleth & District - in North West Powys. His role is to create a safe environment and facilitate and enable people to speak freely about their issues if they wish. 

Now that CAMAD’s Pathways Project has reached its 6 month mark of Big Lottery funding it seems a good time to write.

To be fair it is longer than that we’ve been going as we had Awards for All funding to pilot the project from November 2014. It started off as a Thursday afternoon service, but now it’s Monday afternoons too, and on Tuesday afternoons we have Art Sessions with a wellbeing slant.

It’s much more enjoyable, much less heavy than I anticipated. Although people are free to share their hardships, and do, more often than not we talk a lot of amiable nonsense.

Perhaps it’s very obvious but it seems to me that once the elephant in the room has been uncovered (depression, anxiety) it loses a lot of its power and it becomes something that’s understood, something that doesn’t need to be the principle focus. This is important – when you’re living alone with your demons they can become your whole life, even to such an extent that you don’t know where you’d be without them.

Our set-up is very simple. We have a little lounge area, with music playing and comfy chairs and a communal kitchen with a big round table where people do informal art on Thursdays too.

Sometimes it gets very busy and chaotic but I kind of like that. People shift around from room to room, chatting in different combinations. No-one has her own chair or particular sub-group!

Something I must flag is how brilliantly we have been supported since the outset by the Community Mental Health Team. Most notably, in the frequent visits to the drop-in they really help to demystify the world of mental health care to those who may be embarking upon it for the first time, and they are an informal yet informed ear for anyone who has a particular issue I may not be qualified to address.

I have found it deeply moving how mutually supportive the group is drawing on their own difficult experiences for the benefit of their peers. And it's heartening to see people increasing in confidence – moving into volunteering, college, or just being in any way sociable – by contrast to when they first come along. I’d like to feel that an atmosphere of everyone wearing the same T-shirt goes some way to making these changes possible.

We look forward to the next 6 months and beyond. And will post again soon.

What people say about the Pathways Project:

I’m enjoying coming to the drop-in. It’s a friendly, informal, supportive atmosphere. There’s a very non-judgmental vibe, people seem able to be themselves.

The drop-in is very helpful to me, definitely better than any official help I have ever received in years on benefits. Twice a week makes a big difference to the impact it can have on my life. Occasional ‘deep’ conversations either 1:1 with J or when that fits in with other visitors are very important to me, and these crop up on an as-and-when basis, which works fine for me…the most appropriate and useful help I have ever received.

I have met several people whose warm and welcoming smiles do not come with a judgment – as to why I have come? And what is my problem? One is just made welcome. At CAMAD Pathways there is always light-hearted laughter, nonsense conversation and discussion about current events and sometimes someone wants to talk about a burden which weighs that person down…CAMAD Pathways is there to listen.

If you want to find out more, check out the CAMAD website, or ring: 01654 700071 and ask to speak to Jeremy.

Music therapy - Olivia & Finding Frank

Olivia Bradbury is a musician and performer, who uses music as a therapeutic tool, who recently moved to Powys from London. She has considerable experience of working with people in mental distress. She tells us more about her past work, her play 'Finding Frank' which will be staged in Hay-on-Wye in June 2015, and her hopes for the future.

Olivia leading an orchestra

About me

I am a musician and creative facilitator working for the past few years mainly in mental health settings. This is where I am most interested in working and where I feel music is badly needed. Music workshops provide a way to connect with people who, for whatever reason, struggle with communicating their feelings. I have found that if patients and service users can find ways to speak through making music, they generally feel happier and consequently feel more motivated to take a positive, proactive approach to improving their mental health.

Olivia conducting the Crisis Choir

My workshops

My workshops provide environments in which participants feel supported to express what they want to express through the more abstract route of music/poetry/rhythm which may feel safer and more satisfying than communicating verbally. I provide starting points for participants’ ideas and frameworks in which their ideas can grow. This helps people not to  feel overwhelmed by the freedom of creativity. This careful balance of structure versus freedom is something that is tricky to get right and I have spent years trying to achieve this!

Too much freedom = overwhelmed, too much structure = stifled. I feel this is what is special about what I can offer and what is central to the nature of my workshops.

Olivia in 'Finding Frank'

My play

One of the places I have led workshops in London is Bethlem Royal Hospital. Here I met an elderly man who was suffering from severe anxiety and depression which was having a devastating effect on his communication skills, his memory, his relationships and his senses.

Over six months I saw him improve. It was the most rewarding experience of my career so far. I was so moved by what I saw in this man that I wrote a play about it -  'Finding Frank'. I had questioned whether making music did anything significant in the past, but this confirmed my belief that it most certainly did. This man was transformed! He used to get lost walking from the music room back to his ward, but not after the music work. He began communicating with his wife again and he was remembering how to play chord progressions on his guitar having initially described it to me like holding a foreign object - like an aubergine! He was cracking jokes, looking at me in the eye... I won’t say what else he achieved as I don’t want to ruin the story if you come to see the play.

When the funding cuts hit, I lost my work at Bethlem. Many who work in the arts have lost work over the last few years and it is only depriving thousands of people from a way of healing which is natural, sustainable and life enhancing. The play draws attention to this issue and my touring the piece is my way of building up awareness of the importance of music in treating mental health. 

Whilst making Finding Frank, I carried out many interviews of other people. I ran workshops with people who lived with mental health issues. I wanted to hear as many people's stories as possible - of their experiences of their minds and of their interactions with music. I learnt a great deal and felt very lucky to be able to gain this insight. I used audio clips of some of these interviews in the play (with their permission) and those that were featured came to see it and told me they were "proud to be part of a genuine piece" that talks "fearlessly and respectfully" about mental health. I felt very relieved that they approved! It was music that brought me close to all of these people. Music which is a bonding and unifying experience for any that get involved in it.

And now?

I have just moved to Powys after 11 years in London working in this field. I would love to continue my work here but need to find opportunities to do so. I know that organisations have an allowance for workshops but I know that funding is tight across the board. If you work for a hospital that would benefit from some musical activities and/or know of how I could source some funding to carry on with my work, I would love to hear from you!

For more information about what I have been up to and for contact details do have a look at my website.

Finding Frank is on at The Globe Theatre in Hay-on-Wye for three nights - 18, 19 and 20 June. Watch this YouTube video made for the production in London: