Showing posts with label stigma. Show all posts
Showing posts with label stigma. Show all posts

Tuesday, 25 January 2022

PAPYRUS - Prevention of Young Suicide

 

Suicide is the biggest killer of young people under 35 in the UK. Male and female. Every year many thousands more attempt or contemplate suicide, harm themselves or suffer alone, afraid to speak openly about how they are feeling.” PAPYRUS 2022

Kate Heneghan, who lives in Brecon, has been Head in Wales of the charity PAPYRUS – Prevention of Young Suicide – since 2019. I recently met up with Kate online to find out more about her work with the charity.

What drew you to your role at PAPYRUS?

Well… I suppose, until suicide touches you in some way, you don’t really think about it. That’s the truth. A few things happened within a short space of time in my personal life, culminating in a close family member losing her 28-year-old son to suicide and suddenly it became real for me. Seeing the impact of such a tragic young death on family and friends, on a whole community really, was so very upsetting. We looked for a suicide prevention charity to fundraise for and came across PAPYRUS. This was the first time I had heard of the charity. Sadly, this is what we hear many people say. It’s not until after a young death by suicide that they find us. We want to change that. We want to reach people when they are struggling…. when we can help the most.

Following our fundraising for PAPYRUS I followed them on social media and when they advertised for a Head in Wales, I was looking for a change in career from many years at Public Health Wales and the rest is history!

Tell us briefly about PAPYRUS and the three key principles that underpin the organisation

The charity was originally set up in 1997 by a group of parents who tragically had lost children to suicide. They were passionate about prevention and wanted to bring hope, something positive from their tragic loss.

At PAPYRUS we SUPPORT, EQUIP and INFLUENCE.

We support through our helpline HOPELINEUK 0800 068 4141.

We equip through our awareness raising sessions, suicide prevention training and a range of resources.

We influence in a variety of ways – through local, regional and national policy e.g. we campaigned hard for a change in the law around how coroners reach a conclusion of suicide at inquest from the criminal standard of proof to the civil standard. We have developed a range of hard-hitting campaigns like Spot the Signs and we influence at grass roots level too – like this interview!


The last two years have been challenging for everyone. What has that meant for the demand on your services in Wales?

You’re right. It has been challenging for everyone but sadly young people have been disproportionately impacted. This has led to an increased demand for our helpline services. We have also seen an increase in demand for our suicide prevention training, mostly online.

We have trained many people who work in frontline services who have direct contact with children, young people or young adults on how best to support young people who are struggling with thoughts of suicide. For a range of reasons during the pandemic young people have presented at these services closer to crisis point than was the case pre-pandemic often leaving staff at a loss on how to cope.

We are often asked what is the best way to help a young person who is self-harming?

This can be incredibly hard, especially for parents. Whatever your relationship to the young person, whether parent, teacher, youth worker etc. the key things are to try and remain calm, non-judgmental and understanding. Try not to show in your face what you are feeling, and listening to that young person is crucial. It’s not about asking “what have you done to yourself?” it’s more about establishing what is going on for the young person that has led to this “I’m thinking maybe things are difficult for you at the moment? …."

If you think a young person is having thoughts of suicide, what can you do?

The key thing is to establish whether they are having thoughts of suicide and to get them help. We recognise that asking a young person ‘Are you having thoughts of suicide?’ is not an easy thing to do. To be honest that’s why we deliver suicide prevention training, to help people understand why it’s important to do this and how to do it.

People fear they will put the idea into someone’s head but research shows that is not the case. It’s not easy for a parent – the child may lie. But if you are still thinking that is what’s going on then get help. Go to the GP or get them to A&E.

Our leaflet - Supporting your child: Self harm and Suicide - came about because parents who had lost their 15 year old son to suicide said that in all their many visits to A&E, the GP and pharmacies they never once saw a leaflet about suicide. Diabetes, heart disease, asthma – yes, but nothing on suicide. We added self-harm after consulting with a group of parents pre-publication. They told us they wouldn’t pick up a leaflet about suicide, but they would if it said suicide and self-harm.

Emma Webb raised £10K for Papyrus on a fundraising walk
 in memory of her 16 year old daughter Brodie

How does the Papyrus helpline HOPELINEUK provide a lifeline?

It’s there for any young person under 35 years, experiencing thoughts of suicide. We can work with the young person on creating a safety plan and also signpost them to other support. We are also there for anyone including parents, siblings, students in halls, professionals, youth workers, nurses, GPs and teachers who may be concerned about a young person.

We offer a debrief service – that’s for anyone who’s had an encounter with suicide. It might be a fire fighter and they’ve had to attend a suicide, or someone who works for an undertaker. Sometimes you just need to talk to someone about what went on for you. Sometimes it’s a caller who has had a conversation with a young person and wonders if they said the right thing.

What are some of the key themes coming out of the HOPELINEUK conversations for young people in Wales?

The same things affect young people right across the UK to be honest – relationship breakdowns, anxiety, depression, abuse, family issues, isolation and loneliness, witnessing domestic violence and self-harm.

We’ve supported people with more complex mental health needs during lockdown. So much support went online – there was anxiety about what was happening and what would happen next. And it became difficult to find privacy at home to talk during the pandemic so we introduced web chat. There was a lot of anxiety about returning to school and college too.

Our leaflets are based on what we hear people saying to us.

Tell us more about the training you provide to organisations

Basically, we have a tiered approach to training. We have a 30 minute awareness raising session available free to any organisation, large or small. We have a 90 minute and a half-day suicide prevention training and we also deliver the 2 day ASIST (Applied Suicide Intervention & Skills) training. All but ASIST can be delivered electronically.


Are there any suicide prevention projects in Mid Wales you can tell us about?

Thanks to funding from the Powys Healthy Schools’ scheme we delivered suicide prevention training online to Powys High schools last Summer. Feedback was really positive.

How can we raise awareness and reduce stigma about self-harm and other risk factors for suicide in young people?

Stigma kills there’s no doubt about that. It is responsible for many deaths as it stops us (society) talking about self-harm, suicide and mental health too.

Talking about suicide is the only way to challenge stigma and we know that talking openly and sensitively about it encourages young people to seek help.

It’s a bit of a cliché but I think we could all be a little kinder to one another. Listen to what young people have to say, let them talk about what is troubling them right now. Often, we want to jump in and fix things but if we make a conscious effort to keep quiet and really listen, it can help enormously.

Do PAPYRUS provide support to people who have lost a young person due to suicide?

We were founded by parents who had lost children to suicide. Many of our trustees have lost children or a loved one to suicide. We believe those bereaved by suicide have a unique contribution to make to suicide prevention, we are here to listen. To hear their story and to learn from it. Many of our volunteers have been bereaved by suicide, they say it helps with their grieving, some say it was what kept them going.

Last year we welcomed a new Suicide and Self-Harm Prevention Coordinator to Powys – Jan Roberts. How does PAPYRUS link into this work?

Powys Teaching Health Board is the only health board in Wales to have this post. I think it is really progressive. I have had long chats with Jan - she is doing great work! I have contributed to Jan’s work on the bereavement pathway and some of her work with Primary Care. I’m sure there will be more collaboration in the future and I’m looking forward to it.

I’ve also spoken to a town council in Powys about creating a suicide safer community. I’d like to see more opportunities to work in this way. Jan…are you listening?

What is HOPEWALK and will it be happening again in 2022?

HOPEWALK is an opportunity for people who have experienced suicide ideation, or have lost someone to suicide, to come together and learn from each other / be there for each other. They’ve been hugely popular and there are loads happening across Wales. We promote them for October every year and you can sign up for a fundraising pack of goodies etc. Often, they are a fundraiser in memory of someone who died by suicide. Emma Webb from Newport recently did one in memory of her daughter Brodie who tragically died aged 16, just before lock down. Emma raised over £10k for us.


You may have seen 3 Dads Walking on Breakfast TV before Xmas. Sadly, they each lost a daughter to suicide and did a HOPEWALK for PAPYRUS, in their memory. There is no doubt that the publicity that Emma and the 3 Dads received helped; those bereaved by suicide, to talk about their loss; worried parents to phone our helpline and young people who are struggling to reach out.

What are the main challenges working in this field?

Every time I hear of a young suicide in Wales I think – did they know about us? This makes me work harder, it encourages me to get out there and increase our reach so more young people know where to access support.

Put the helpline number in your phone now – you never know when you might need it: HOPELINEUK 0800 068 4141.

Tell us about some of the most rewarding work you have done at PAPYRUS

Hearing that we are making a difference. Attending an event and having a parent come up to you and say they have phoned us and received really helpful advice. Talking to a Head Teacher who says our support has been invaluable. Reading feedback from a young person who has accessed our helpline and says

"When I phoned you I really was planning on ending my life tonight but now I’m not. You have really made me feel better, I have not been able to talk to anyone like this before, thank you so much”.

How do you like spending your time when you’re not working?

I love walking my dog – no excuse living in Powys! I love traipsing around shops in our small towns and meeting friends and family for coffee, cake and a chinwag!


Many thanks to Kate for telling us all about her role at PAPYRUS. If you want to find out more you can contact Kate by emailing Kate.Heneghan@papyrus-uk.org.

If you are a young person thinking about suicide, or concerned for a young person, you can call The PAPYRUS helpline HOPELINEUK 0800 068 4141, text 07860 039 967 or email pat@papyrus-uk.org 9am – midnight every day of the year (weekends and Bank Holidays included).

For more information about PAPYRUS and their resources and training offer check out the PAPYRUS website

Tuesday, 28 September 2021

#ItTakesBallsToTalk - Michael Sheen & Ystradgynlais Mind

 

#ItTakesBallsToTalk is a mental health campaign by Ystradgynlais Mind in affiliation with their local Rugby community featuring the voice of Michael Sheen. 

Ystradgynlais Mind told us more about the campaign:

This campaign is aimed at creating a much needed conversation surrounding the mental health of men within the Welsh Rugby community. 

In this land of our fathers, we are calling out to all ‘the boys’, our brothers, our uncles, our cousins, our sons. We are asking you to tackle this stigma head on by joining our movement… 

When we lose one of ‘our boys’, we always, always ask why? Nobody ever sees it coming… so get on board, we can beat this… give this a try… Join our movement by following our pages and sharing this message as loudly and proudly as you possibly can. If it saves just one life, then it’s a job well done. 

#SilenceKills

Following a disproportionate rate of suicide within the community a collaborative initiative between Ystradgynlais Mind and local Rugby clubs has been born. 

Evidence has shown that you (men) are less likely to reach out to ‘professionals’ when faced with feelings of depression and are instead far more likely to talk to your mates in more social settings, in the changing room, or even over a pint, in the club. 

#SpeakYourMind

So, in light of this Ystradgynlais Mind has piloted the training of ‘mates’ in Mental Health First Aid to equip them with the knowledge and skills to facilitate conversations in supporting those seeking help. Some coaches, referees, players and affiliated members of rugby clubs have already received training, but we welcome more to join this initiative. If you are a club within the local area who would like to receive this training, please refer to our website.

Find out more about the campaign on our social media accounts too:




Should you require immediate support please see below useful contacts: 

Samaritans - 116 123 
Mind - 0300 1233 393 
CALL 24/7 - 0800 132 737 
NHS Direct - 111 
Hafal - 01792 816600 
Bipolar UK - 0333 3233 880 
Platfform - 01656 647722 
PAPYRUS Prevention of Young Suicide - 0800 068 4141 
The CALMzone - 0800 585858 

This campaign was brought to you by Ystradgynlais Mind (Charity reg: 1075400) in affiliation with our local Rugby community:

Yogits Vets Touch Rugby, Ystradgynlais RFC, Ystalyfera RFC, Abercrave RFC, Glais RFC, 
Cwmtwrch RFC, and Cwmllynfell RFC. 

Special thanks to Michael Sheen.

Wednesday, 2 January 2019

Welsh Ambulance Service on mental health - Keep Talking

This New Year we start by promoting the theme that talking is vital when our mental health is low and particularly when we feel things are heading out of control and into crisis. Sometimes we forget that staff working in the emergency services, and intervening to help people in the middle of a crisis, may well be struggling with their own mental health issues. 

Here at PAVO Mental Health we honestly believe that any of us, not just 1 in 4 of us, could potentially struggle with mental health issues at any point in our lives. But that aside, we agree with everything else Steve tells us, and are particularly keen to share an extremely powerful film. It features WAST colleagues speaking out about their own mental health struggles, and explaining what really helped them, when life's challenges began to feel too overwhelming. Over to Steve at WAST:

I’m Steve Clarke and I’m Head of Mental Health for the Welsh Ambulance Service. I joined the Welsh Ambulance Service in April 2018, having previously held positions in London mental health trusts, and in mental health charities, and I was previously Deputy Director of Mental Health for England. 

Steve Clarke, Head of Mental Health, WAST
As Head of Mental Health for the Welsh Ambulance Service, my role entails the delivery of the Mental Health Improvement Plan for the Welsh Ambulance Service, which has three broad areas: 
  1. The mental wellbeing of our staff. 
  2. Our mental health practice. 
  3. Our mental health pathways. 
This involves ensuring that our staff have access to the right treatment and the right care at the right time, ensuring that they are equipped to deal with people that have mental health problems in whatever environment they are working in, and to make sure that we work in concert with our partners in the health boards to make sure that we’ve got referral routes-on for people so we don’t just convey them to an Emergency Department. 

Since joining WAST I have been working to raise awareness of mental health problems within our workforce, and in particular to highlight the importance of talking about our mental health as an important step in de-stigmatising the subject. It is estimated that 1 in 4 people will experience a mental health condition at some point in their lives, and many of the people we work with every day will be experiencing mental illness, crisis and distress. However, some of us find it difficult to talk about our own experiences, for fear of being judged or that our employment will somehow be affected. 

Our staff made this film to try and break through some of these challenges. Talking frankly about their own experiences, people from across the Welsh Ambulance Services NHS Trust (WAST) wanted to let others know that talking to someone really helps, that support is available and your colleagues, managers and families will support you. You can view our film below – please share it, encourage others to watch it, and above all listen....


Steve's piece was originally published in the Winter 2018/19 edition of Network News, the Welsh Ambulance Service's Patient Engagement & Community Involvement team newsletter.

Read more about mental health and the Welsh Ambulance Service Trust in a post by Isobel Jones, who works for the WAST Patient Engagement & Community Involvement team.


Tuesday, 3 July 2018

We Wear The Same Shirt

(L-R) Ruth Fox - Mental Health Campaigner, Sam Morris - Gold Ambassador & Organiser,
 Neville Southall - Welsh Footballing Legend 
Sam Morris is a Sport Powys Gold Ambassador. During Mental Health Awareness Week in May I met Sam briefly at a partnership event we organised in Llandrindod Wells when he attended with colleagues from Sport Wales

We have promoted the project Sam is involved with in Newtown on our website events calendar and on social media, but I didn’t think too much more until suddenly the World Cup was upon us! It seemed like the perfect opportunity to ask Sam to tell us all about his involvement with this local football initiative promoting good mental health and combating stigma.


Tell us more about your role as a Sport Powys Gold Ambassador

The Gold Ambassador programme is Sport Wales’s scheme, which operates in the whole of Wales, and I was lucky enough to be selected as the Powys Gold Ambassador for North Powys. The role of a Gold Ambassador is to work closely with the school’s Sports Development Officer and come up with ways of increasing physical activity levels in schools. I didn’t have a Sports Development Officer to work with inside college, so as part of my role I did all of my work outside. I helped run school sports events in Welshpool and Newtown, and ran Silver Ambassador Days with Sport Powys. I then had the mental health programme, which was my main scheme when I applied to become a Gold Ambassador.

How long have you been playing football and what impact has it had on your wellbeing?

I played football from a very young age, joining the local Sunday Soccer, until I was playing U16s when I decided to take on a role as a coach. I played the odd game for the college team as well. I believe that football may be a huge impact on my wellbeing, I have always been a healthy lad, haven’t had any physical health issues, which was mainly down to all the football I played. I played across Wales with the Academy team and was always with a group of lads who I got on with very well and still get on with now.

What is the We Wear The Same Shirt project all about?

Physical activity has proven to be one of the most effective methods of helping improve someone’s mental wellbeing, and statistics show that 1 in 4 people in Wales suffer from mental ill health. With this being the case, the FAW Trust and charity Time to Change Wales, used their skills and knowledge to tackle the stigma, which resulted in the We Wear The Same Shirt Programme (WWTSS). Three clubs within Wales - Newport, Wrexham and Newtown - are all part of the WWTSS programme which started in 2015.

It is a scheme which offers individuals who suffer from mental ill health a place to go and take part in physical activity, but also to meet new people and develop important life skills, as well as football skills. Each club provides weekly sessions, which, due to funding, are free to access and sign onto.

200 people are signed onto the programme within the three clubs but the target is to get over 700 people and more clubs involved in the programme across the country so it has easy access for more mental health sufferers.

Who can sign up to the training sessions in Newtown and how do they do it?

People who suffer from mental ill health, people who feel excluded, lonely, these people can all come down to the sessions and join in. As a club, we want to make it easy for people to join, and all you have to do is come down to one of the sessions on a Wednesday night (5:00pm – 6:00pm) meet up with myself and we will sign you on. And that’s it. It’s simple. Us coaches and current participants aren’t here to judge, but to listen and help, which is the whole reason for the programme.


How does taking part in the We Wear The Same Shirt training sessions help people struggling with their mental health?

As previously mentioned, physical activity has proven to be one of the most effective methods of helping improve someone’s mental wellbeing, because it takes them away from their environment, and lets them have one hour of fun, being with people who suffer from the same issues. Also, doing sport and physical activity releases chemicals in the body and makes the participant feel more positive. They forget what’s going on, as all they are focussed on is the session and what they are participating in.

All our sessions involve important life skills such as communication and teamwork. The participants start to connect with each other and form friendships, which is great to see. Then people keep on turning up every week because of these friendships that they made from the session and as a coach, it’s the best type of reward you can get, seeing your sessions make an impact on people’s lives.

There was a We Wear The Same Shirt tournament in Newtown in March this year. How did it go, and are more planned?

The WWTSS tournament in Newtown was a massive success, more than I expected it to be. The tournament was due to be in January but snow cancelled that, which wasn’t good. However, from it being cancelled more people wanted to know about the tournament and more teams entered. On the day we saw 150 participants and 19 teams arrive at Latham Park for a fun, but competitive tournament. The best news was that Wales Goalkeeping Legend, Neville Southall, attended the event and spent time talking with the participants and also staying to help hand out medals and trophies to the players. The day was great, everything ran smoothly, and raised a lot of awareness around the town about the WWTSS programme and the one run in Newtown, which was the whole purpose in the event. As it was a success, I know that the FAW Trust are planning one for later this year and we are likely to make this event annual in Newtown.

Have there been any challenges setting up the project?

There have been some challenges setting up the project in Newtown, but it’s like every project, there are always challenges. I joined the project at the start of 2017, and only two participants were at the project. But from hard work and spreading the word, plus the tournament, one year on we have about 20 participants signed on. We have been able to reach out to more, but now college has finished I will be working closely with mental health charities in Powys, to provide sessions and try to get more participants down to the project. But, it’s looking up for the project in Newtown.

Tell us about some of the most rewarding work you have done so far with the We Wear The Same Shirt project

Everything about the project and the work I have done is rewarding. From starting the programme back in early 2017, with my college tutor, Gareth Watkins and fellow Coach, Dave Rose, everything about the project has been rewarding. From seeing the project go from 2 to 20, within a couple of months, from the team representing Newtown at a number of events, and seeing players go on to better things within the club. One has become a qualified local referee, one has become a coach, and others have gone on to playing local team football, winning awards, like manager’s players. This small project has made a massive difference to all the participants but has also changed me as a person and as a coach that is what is rewarding.

I hear you're studying Sport at Newtown College. What career do you hope to follow eventually and why?

I have just finished studying Sport at Newtown College, finishing with a triple distinction star. I will soon be studying Football Coaching and Performance at University of South Wales, but the only career work I see myself doing is football related. I have a passion to coach and make a difference and thanks to the college, Newtown FC, Sport Powys and a number of people, including Gareth Watkins and Dave Rose, I will be able to pursue that career.

Which team are you supporting in the 2018 World Cup?

From the start of the World Cup I have always thought that France would be the team to beat, but this year’s World Cup has been very odd and England have a massive chance, but I’m backing France.


Many thanks to Sam for telling us all about the We Wear The Same Shirt programme. If you want to find out more you can contact Owen Durbridge, the Club Secretary at Newtown AFC, by emailing owen.durbridge@sky.com or ringing 07967 979089.


Monday, 18 January 2016

Meet Mandy Pearce - Reablement Worker at Mid Powys Mind


In 2015 Mandy Pearce started as Mid Powys Mind’s new Reablement Worker, funded by the Lloyds Bank Foundation, in a new three year project to help support people in transition from hospital. 

Working originally with patients from Felindre Ward in Bronllys Hospital, South Powys (a ward offering acute inpatient mental health services) the Reablement Service offers much needed support to people coming home after a medium to long term hospital stay.

We caught up with Mandy recently at her Llandrindod base to find out more about the project has evolved since she started last summer.


What does reablement mean exactly?

The reablement approach is well known in physical health. It is newer in mental health. It is short intensive support, usually offered to people in their own homes, after a stay in hospital and during a period of ongoing recovery back in the community.

I have access to patients’ Care Plans, liaise with their Care Co-ordinators and also attend their discharge meetings. Once they have left hospital I then visit them and provide support depending on their needs. This can be very varied depending on individual situations. Two of my first clients had been long-term patients on the ward – one for 12 months. There was a lot of work to be done. People become quite institutionalised and it can be quite scary returning to the community. Even going to the corner shop can be hard.

Some people, meanwhile, are only in hospital for a couple of weeks and then quickly get back on track with their lives once they leave.

How does reablement make people’s lives better?

It provides additional support that hasn’t been there before. It’s about looking at people’s needs. Isolation is a key word really. The hospital reflects that sense of isolation back to the patients. They have been unwell at home for quite a long period, perhaps staying indoors, maybe even in bed. Then they go into hospital and are still quite isolated.

Originally I thought the role would involve carrying out practical tasks such as looking after a pet or going shopping. But people want to talk. That’s often their main need. We have to be flexible in our approach and try and meet people’s needs.

Who is eligible to receive the service?

When I started it was just available to ex-patients of Felindre Ward who are from the Radnorshire area of Powys. However, my remit has now been extended and I work very closely with the Crisis Resolution Home Treatment Team which is based at Bronllys Hospital. Staff in this team support people to remain at home, and when people are discharged from their care they can be signposted to me for further support.

How was the need for your post identified?

Colleagues at Mid Powys Mind originally identified a need through speaking to staff at Felindre Ward and the Crisis Home Treatment Team. They then worked on a funding bid and were pleased to receive an award from the Lloyds Bank Foundation to fund a 3 year project.

Key to my role is my link with Mid Powys Mind. Mind offers a comprehensive service with many different facets, and I can help people understand the service and access the right area. People might just sign up for counselling or go to the art group once a week. It’s whatever works for them. More often than not it puts routine back in to their lives plus it gives them the opportunity to spend time with others who understand.

I can also signpost people to Tim Skelcher, our 1:1 Recovery Worker



You mentioned isolation, what are some other typical difficulties that people face upon leaving hospital?

Yes, isolation is a key factor as well as low confidence and, of course, stigma. Living in rural areas is not only a contributing factor to isolation but can make someone feel that all the locals have an idea of what has been going on for them and although things are improving around awareness there still is a certain amount of stigma surrounding mental health issues.

Returning home from hospital can be daunting for patients as it can be a reminder of how unwell they were before their admittance to hospital. Properties have been left and the environment can be reflective of how unwell someone was. So, practical help in sorting and organising can be really helpful. There can also be a backlog of mail that needs attending to. This can be stressful depending on what it is.

How long does your support last?


I work with people for up to eight weeks following their discharge. However, if I feel they need further support I can request an additional four weeks. It can take a long time to get there sometimes.

I visit Felindre Ward regularly so that people know who I am and generally have a chat with the patients. There is not enough talking going on. Interpersonal skills are so important to people’s recovery. When I start working with a patient I often find that they just want to have a good chat.

How do people stay safe, well and independent once the reablement support has finished?


Some clients may already be in receipt of additional support via the Community Mental Health Team and other care organisations. However, as part of my post it is important to try to engage people with the service of Mid Powys Mind and introduce/support them to access possibly outreach groups and many other activities that Mind has to offer.

Tell us how your work fits in with that of other voluntary sector groups


At Mind we have been working hard to create better working relationships with partner organisations that can offer a specialist service to cater for a client’s specific needs. For example - drug and alcohol support, housing and tenancy. Also, doing something meaningful with their time when further along on their recovery journey can play a very valuable role, so volunteering themselves could be an option.

What are some of the hardest things about working on this project?

I suppose one of the hardest things about this job is that time is limited. During my time with a client I can develop a good working relationship and in order to do this there is a certain amount of trust and understanding realised. It is hard when our time comes to an end for them and all clients so far have said they wished it could have been for longer.

The nice things about working on the project?

The nice part of this post is, of course, seeing clients develop and their confidence build and an ability to push their boundaries and try new things.


Any other recent developments at Mid Powys Mind you can update us on?

We are developing a youth peer support group (18 – 25 year olds) which meets weekly on Tuesdays, 1 – 3pm, in the Training Room at the Resource Centre. It is great to be able to put young people in touch with their peer group and signpost them to other services that can be useful to them. We’re planning to work again with Owen Griffkin later in the Spring with more Havin’ A Laugh workshops. And a professional animator will be coming in to bring people from different generations together and interpret their stories using animation, so we’re very much looking forward to that. 




Many thanks to Mandy for telling us about the Reablement Service at Mid Powys Mind. You can contact Mandy by emailing re-able@midpowysmind.org.uk or ringing 01597 824411.

Thursday, 8 October 2015

World Mental Health Day 2015


Saturday 10 October 2015 is World Mental Health Day, which is organised by the Mental Health Foundation in partnership with the World Federation of Mental Health and the World Health Organisation. This year’s theme is Dignity in Mental Health. The MHF states:

“We believe that effectively supporting people experiencing mental health problems is on target to become one of the greatest public health challenges of our time. Stigmatising and discriminatory treatment can be particularly distressing when a person is experiencing a health crisis.

We all have mental health, and by failing to treat people with mental health problems with dignity we make it more difficult to ensure that everyone takes steps to safeguard their wellbeing and to seek help, as it can lead to self-stigma, low confidence, low self-esteem, withdrawal and social isolation.”


The World Federation for Mental Health has published a collection of papers under the heading "Dignity in Mental Health" from "expert authors who show that dignity in the mental health context can have many meanings and can be applied to every aspect of care." There are contributions from all around the world - including for the UK - Professor Mike Pringle CBE on "Mental Health for All: Mental and physical health parity - the role of General Practice".

The definition of dignity, according to one of those handy online dictionaries, is: “being worthy of honour or respect”. In our day-to-day lives we all expect to be treated with dignity, and it follows on from that – so we would too if in contact with any services we seek in relation to our mental health.

But provision of mental health services is complex and linked in to the laws of the land. Staff are often desperately firefighting due to cuts and increased paperwork, sometimes they barely have time to even talk to their patients…. The very fact that this theme has been chosen for World Mental Health Day 2015 suggests that there are issues around being treated with dignity whilst distressed.


Mental Health Foundation Tea & Talk initiative
for World Mental Health Day
What does it feel like, not being treated with dignity? It might feel that:

I am not being listened to

My colleague Jane Cooke says: “I think the fundamental thing for me is the quality of listening - and acknowledging that I am saying what I am saying - I think my dignity is affected when people reply with something like “So it’s about…” and then telling me what I said. It means that I am not heard - I’ve been put into a box.”

I have been labelled

Perhaps I have been told I have a specific diagnosis or disorder. I might not agree, but I might need the diagnosis to access further support or other services. I have to compromise to make a step towards recovery. In North Powys young people are fighting back against being labelled – those involved in the Young Adult Peer Support project at Ponthafren Association made a video called – “I don’t let mental health define me” in which young people challenge stigma with the powerful message: “Everyone has mental health.”

I am just a number, an entry on a list, without individuality or identity

It is all-too-common anywhere in Wales, not just in Powys, to be on a waiting list for psychological or talking therapies if support of this kind is considered appropriate. People in this situation can feel isolated, forgotten, and helpless. They don’t know where to turn. But just communicating with people can be helpful, as Jane found out at an event she helped organise earlier this year specifically to look at issues relating to the waiting lists.

I might lose my freedom

I no longer have control over my life – perhaps I am forced to take medication against my wishes or engage in activities which don’t interest me. Ultimately I may lose my freedom if I am detained under the Mental Health Act. Derek Turner and Jan Rogers wrote about the value of Advance Statements for crisis planning recently, whereby people are able to make their wishes clear in a written statement which could be referred to in times of mental health crisis. In this way someone experiencing mental distress in a public place could be supported with dignity rather than arrested and perhaps “bundled into a police van.”

I am not valued – by family, friends or staff with whom I come into contact… My self-esteem has hit rock bottom…

On Maple Ward at the Longley Centre, Sheffield Health & Social Care NHS Foundation Trust has developed ‘Dignity Steps’ which translate the views of people using the service into actions for improvement. It’s a lot like the approach taken by Powys Patients Council here, where mental health inpatients meet with experienced volunteers to talk about improvements they would like to see on Felindre Ward at Bronllys Hospital in South Powys. Rhydian Parry, who is a rep on the National Mental Health Partnership Board, wrote about his experience of volunteering on Powys Patients’ Council.

Together for Mental Health is the Welsh Government strategy for improving mental health and a vision for mental health services across Wales. Objective 13 of the national outcomes states:

“Service user experience is improved, and safety, protection and dignity are ensured and embedded in sustainable services.”

The ambition is there, but what is the reality actually like? Identifying the problem, in some ways, is easy. Much harder is thinking of solutions… but there are lots of ideas on the Social Care Institute for Excellence website – take a look and see what you think.

If you have been in contact with mental health services, do you feel you were treated with dignity? If yes, great, tell us about it and we can spread the news of some good practice! If not… why do you think this was so, and what could be done to improve things?


Brecon & District Mind is hosting a Mental Health Awareness Morning to mark World Mental Health Day this Saturday 10 October, 10am - 2pm at Brecon Guildhall. Tea and coffee available. All welcome.

Thursday, 3 September 2015

Comedy and Wellbeing - Havin’ A Laugh Project

by guest author, Owen Griffkin

Gein's Family Gift Shop

There’s an old saying which goes -  "Laughter is the best medicine." There’s also a joke, which is nearly as old, which retorts, "Unless you are diabetic, and then it’s insulin".

I was a stand-up comedian for a good while back in the last millennium, and now I produce a host of comedy nights in and around the Mid Wales area and I have to say that I wholeheartedly agree with this adage, having seen first hand the benefits of a ‘right good b%***y laugh’.

Anyone with any experience of mental health issues knows that laughter is a wonderful way to feel better as it decreases our stress hormones, produces endorphins and increases memory, alertness and learning.

It’s for this reason that I have been working with the Wyeside Arts Centre, the Arts Council of Wales, and the Garfield Weston Foundation
on a pilot project right here in Powys to help build confidence, improve mental wellbeing and break down some of the stigma attached to mental health issues.

I had the idea after holding workshops for the recent DIY Futures project and again with Powys Mental Health Information Service. The workshops comprised of simple and quick word play and story-building exercises, which had the participants finding new ways to share experiences in a safe environment. These were a lot of fun and there was huge interest in a longer-term project.

Participants on Owen's Laughter Workshop
Individuals' Forum Day, Caersws, April 2015
Finally after consultation and planning the idea has finally come to fruition (hooray!) in the form of the ‘Havin’ A Laugh’ project and we will be running some taster workshops this October. This will lead on to the main part of the project in early 2016 which will consist of 4/5 more in-depth sessions.

The project will be led by James Meehan and Kiri Pritchard McLean, two of the team behind ‘Gein’s Family Giftshop’ - a deliciously dark sketch show group who have just had a mini-series produced on BBC Radio Wales, and appeared in an episode of the ‘Inside No.9' programme on BBC 2. They have been nominated for most of the major comedy awards over the last two years and we couldn’t ask for anyone better to be heading up this project.

The sessions will be suitable for anyone from any background, of any age and physical ability.

There won’t be any pressure to perform and the focus will be on looking at your stories in a new way, confidence building, and, most importantly, having a laugh and enjoying ourselves.

There will be an OPEN TASTER at Wyeside Arts Centre on Wednesday 14th October from 1:00 - 4:30pm which is open to all and is a great way to see what you can gain from the project.

For more information or to book a place please email owengriffkin@gmail.com


UPDATE!!
The Open Taster at Wyeside Arts Centre is no longer going ahead. However, there are three other Havin' A Laugh workshops taking place which are open to all:
Tuesday 13 October - 1 - 4pm & 5.30 - 8.30pm
The Wellbeing Centre, Mid Powys Mind, Llandrindod Wells
Thursday 15 October - 2 - 4pm
Wesley Church Centre, Hospital Road, Builth Wells

Tuesday, 5 May 2015

Light up the community

Shakira holding an owl at the Llandysil Dragon Festival
Volunteering at Ponthafren Association age 8!

Shakira volunteers at Ponthafren Association in Newtown. As many readers of this blog will know, Ponthafren Association is a registered charity in North Powys for people with mental health issues or those that feel lonely or isolated. The charity has an open door policy (meaning anyone is welcome). It is based in Newtown with an outreach centre in Welshpool and also a weekly drop-in session in Llanidloes.

Ponthafren provides a range of courses from arts and crafts to basic skills to anger management. A lot of these courses are Open College Network (OCN) qualifications. The organisation has approximately six hundred members. 

Shakira was only 8 when she started volunteering (she is 11 now), and we decided to find out more about what she does and why she enjoys it so much.

I first started going along to Ponthafren when I was eight years old as both my Nan and Granddad volunteer there. My Nan runs a craft group on a Friday evening called “Arty crafters”. We make cards, bug homes, wind chimes, paper machie snowmen and a lot of other items. My sister and me are in the PR (public relations) group in Ponthafren also. 


We go along to shows, carnivals, fairs and other community events. We take leaflets and flyers along, also the craft items we have made. We sell these and the money goes back into Ponthafren. We tell people about Ponthafren and what everyone does. This helps to let people know that Ponthafren might be the place for them if they ever need support. Also by telling people about Ponthafren and talking about mental health helps to get rid of the stigma that seems to be attached to it.

Shakira helping at a stall at a local show
Another busy day waking up at five o’clock in the morning, getting ready to go off to do a stall for Ponthafren. I help make lots of money for Ponthafren by making all sorts of craft items, for example wooden wheelbarrows, bug boxes, occasional cards and much more.

We have been to lots of villages and towns with our stalls. Usually at these events and at the open days I paint people's nails and charge £1 that goes into a fundraising pot for Ponthafren.

Me and my sister, Billie-jo, went to help out at Welshpool open day. We served tea and coffee from 10.30 am to 4 pm. Another open day but this time in Newtown we stayed at my Nan’s and we were wrapping up extra lucky dip prizes, sorting items, and labelling things ready for the next day.


Shakira and her sister receive a certificate for 200
volunteering hours from Russell George AM.
Recently my sisters and I went with the Arty crafters group and public relations group to Llandudno. We were thankful for good weather. We sat on the beach and shared a picnic with the seagulls. We went in the sea but it was pretty cold.

At the last open day Assembly Minister Russell George came along and presented us with a certificate to say we have completed two hundred volunteering hours. We had a letter from the House of Commons saying congratulations on what we have achieved and keep up the good work. 


I go with Nan sometimes to different group and organisations, where she gives a presentation all about Ponthafren. We provide a hand on craft session but some people struggle with threading beads or gripping scissors. So I help them and I have a really good time and learn a lot from doing this.


The garden volunteers from Ponthafren go out and help members of the community with their garden by weeding and generally tidying up. On a weekend or in school holidays I go and help.

I like volunteering and it shows that even at my age there is always something you can do to help the community and have fun while you are doing it.

Many thanks to Shakira for telling us all about her volunteering experiences - 200 hours - wow! Have you any stories about your experience volunteering for mental health that you could share with us? Let us know.

Find out more about Ponthafren Association's volunteers on the organisation's website here.

Thursday, 22 January 2015

YAPS project video - I don't let mental health define me



Last year we wrote about the Young Adult Peer Support project (YAPS) at Ponthafren Association in North Powys, and interviewed Zoe Greenslade, one of the members. YAPS offers peer support mentoring to young people (16 - 25 years old) who experience mental health issues, by helping to give them a voice of their own in the development of services.
Robin Green
YAPS Admin Assistant

The first phase of the project has involved recruiting, training and supporting Youth Peer Mentors and coordinating activities and opportunities for them to advocate for the needs of young people who experience mental health issues.

In Autumn 2014 the group decided they wanted to make a music video using music over still photographs. Previously the group had set up various workshops on song writing, music, photography and mental health awareness. 

Inspired by all their learning the young people worked with the YAPS Administrative Assistant, Robin Green, to achieve their aims, and the video has just been published on YouTube. It addresses the theme of stigma, challenging some of the commonly held myths around mental health issues which particularly relate to young people. 



The YAPS group remains a small but passionate group but those involved would like to encourage more people to join them to develop future projects. These include a public relations event and an audio play.

Meetings are held at Ponthafren Association in Newtown for two hours each week, and anyone aged between 16 - 25 is welcome to join the group. You can find out more by calling 01686 621586 or 07792 346 519 or email: yaps.project@ponthafren.org.uk

So, watch the group's first video and let us know what you think.



YAPS is one of six projects funded by the Big Lottery Fund as part of the One Powys Connecting Voices programme managed by Powys Association of Voluntary Organisations.

You can find out more about Ponthafren Association here.

Thursday, 18 September 2014

Hello, and welcome: Terrence Higgins Trust in Powys

A few weeks ago I found out that the Terrence Higgins Trust - the charity promoting a healthy and stigma-free life for people with HIV - had set up a Community Liaison and Participation Project in Powys.  People who have been diagnosed with HIV often experience stress, anxiety and depression, and can feel particularly isolated in a rural county like Powys. The Trust provides support and advice for them and also anybody affected by these issues, such as family members and partners. Andrea Taylor, Support Service Coordinator of the HIV and Hepatitis Action for Wales, kindly agreed to answer a few questions about her work for the Trust, and the support that is available.

Tell us more about the work you are doing

Our Community Liaison Project is a Wales-wide service which can help if you are living with HIV and/or viral hepatitis. We can help if you are feeling isolated or lonely by increasing your access to a wide range of services in the local area. We can also help with some of the day-to-day issues of living with HIV and/or viral hepatitis and how they impact on your life. We can also help if you would like to make your organisation more knowledgeable and welcoming people with these conditions.

What is HIV and Hepatitis Action Wales?

It is a Wales-wide service which can help with any aspect of living with HIV and/or viral hepatitis. If you have questions about your treatment, your test results or day-to-day issues such as employment, housing and welfare benefits we can help support you. We can also provide emotional support and counselling. All our services can be delivered on a face-face basis locally, by phone or via our online support services.

Why is there a need for your work?

Despite the huge progress in care and treatment for people living with HIV/HepC in the last three decades, reducing the stigma around HIV/HepC has taken longer and proven more difficult to address.

HIV is still a stigmatised illness and discrimination and prejudice remain issues of concern to people living with HIV. Fear of discrimination and actual experiences of injustice can have a profound effect on individuals mental health and self esteem, which in turn can have significant implications for society as a whole.


Stigma often prevents people being open about their condition and it inhibits the kind of open discussions that is needed to challenge society’s lack of knowledge and understanding about HIV/HepC.

How do you know about the ongoing stigma associated with HIV?


A 2010 survey found that 66 per cent of the public agree that there is still a great deal of stigma around HIV. A similar number also believe more needs to be done to prevent discrimination. However, general awareness and knowledge levels among the public can still be startlingly low. People living with HIV/HepC regularly report being treated badly, receiving poor service or being discriminated against because of their status. Sadly, a high level of discrimination still occurs within some organisations.

A 2008 survey of people with HIV in London found that one third of people encountered discrimination because of their HIV status. Of those reporting discrimination, half said it had come from a healthcare worker, one in four from a dentist, one in five from a GP and one in ten from hospital staff.

We have supported people who have been bullied, intimidated and even threatened with violence because of their condition. Stigma and prejudice can compromise people's personal relationships and fear of disclosure can prevent them getting the kind of basic support that other people living with long term conditions can expect from family and friends.

How does the stigma of HIV affect people’s emotional wellbeing?

The fear and isolation this creates can have a profound effect on a person’s physical and emotional health. In many instances, people living with HIV/HepC can require more support in dealing with the stress and anxiety caused by the stigma, than with the physical impact of the infection. Mental health and in particular depression is a common experience for people living with HIV and a 2012 study showed that one in four had a current depressive disorder. Despite these figures, depression is not an inevitable aspect of HIV infection, but it could be triggered if you feel anxious or uncertain about your future. It is possible that people living with HIV are suffering from depression without realising it.

What about discrimination against people with HIV seeking employment?


People living with HIV/HepC are often fearful of disclosing their status in employment or recruitment settings and many people face barriers to securing or remaining in employment as a result. Similarly, many people are reluctant to disclose in settings such as with their GP or dentist and this in turn compromises the level of support they can expect from public services.

The public sector is the UK’s largest employer, with the NHS the largest single employer, so it holds considerable potential to not only improve the delivery of services to people living with HIV/HepC, but to also increase HIV awareness and tackle discrimination.

What is happening in Powys and Ceredigion?

A great deal more could be done within the health service in particular in terms of training staff on HIV related stigma rather than focusing on simply HIV infection control. Our projects in Powys and Ceredigion involve working in partnership with people living with HIV and representative agencies. We will continue to fight to challenge HIV stigma and increase awareness in public services and within our community.




If you would like to speak to your local Terrence Higgins Trust support worker either to request training, arrange an appointment, or simply have a chat on how we might be able to support you, please contact:

Andrea Taylor, Support Service Coordinator - HIV and Hepatitis Action for Wales
 mobile: 07824 809 779 email: andrea.taylor@tht.org.uk

Joshua Hall, Community Liaison Project Manager - 
Community Liaison & Participation Project
tel: 02920 666 465  email: josh.hall@tht.org.uk