A look into Borderline Personality Disorder (BPD)

© Sarah Dale

Sarah Dale

Sarah Dale is a citizen rep in Powys – an unpaid volunteer who sits on the Powys Mental Health Planning & Development Partnership to share the voice of lived experience. As a citizen rep Sarah previously sat on the Wales Mental Health & Wellbeing Forum (formerly the National Mental Health Service User and Carers’ Forum).

Sarah has also worked incredibly hard over the past few years as a regular contributor to the Engage to Change group, which is a sub-group of the PMHPDP. This group was established to "more widely promote the Mental Health Planning and Development Partnership’s activity, to proactively challenge any stigma associated with mental health and to collect "service user" views / experiences, co-ordinate resolution and feed back on resulting change to people using services."

And during the Covid-19 pandemic Sarah has also created and delivered a hugely valuable training session on Self-Injury Awareness to many of those working in the provision of statutory mental health services in the county. Sarah is absolutely passionate about raising awareness of mental health issues and brings an honesty and openness to the work which allows greater understanding for all those watching / reading / exploring more about these issues.

© Sarah Dale

Sarah's experience of Borderline Personality Disorder (BPD)

Sarah's latest project is an indepth look into Borderline Personality Disorder to promote during Borderline Personality Disorder Awareness Month this May.

"You are probably wondering... "what is Borderline Personality Disorder? And you are not alone. This is the response I get when I tell people I have BPD, and yet I still haven't been able to accurately explain what the disorder is, and how it affects me. 

The reason you probably haven't heard of the disorder is that most people with (BPD) have experienced a lot of stigma. Often being described as 'manipulative', 'attention seeking' and 'incurable'. You have probably seen over the years, celebrities opening up about their depression, anxiety or bipolar disorder, thus more people are speaking up about their own struggles.

However, no one wants to talk about the more 'scary' or 'shameful' issues like self-injury, eating disorders, psychosis and personality disorders."

After exploring What is BPD? Sarah considers why it has this particular name, what it's like to have BPD, some of the feelings that people with BPD experience such as extreme emotional instability, fear and abandonment, and people's struggles with a sense of identity. Sarah then turns to the positive side of BPD and explores the empathy and compassion that people with the condition experience, plus an often increased creativity. To finish off Sarah debunks some of the commion BPD myths, such as that people with BPD are incurable and / or attention seeking.

You can read the whole piece, A Look into Borderline Personality Disorder (BPD), on our Powys Mental Health website.

If you have any queries for Sarah, or experiences to share, then do pop them in the comments' section below.

© Sarah Dale

Read more from Sarah

Sarah has written for this blog previously on:

The Wales Mental Health & Wellbeing Forum – an update

Together for Mental Health consultation - a Powys view

On the Experts by Experience panel

And on the PAVO Health & Wellbeing blog:

Self Injury Awareness 

You can also catch up with Sarah on her Facebook page - Sarah Mental Health Rep.

Citizens Advice Powys - supporting mental health inpatients

Yasmin Bell is the Chief Officer at Citizens Advice Powys, the charity which “provides the advice people need for the problems they face and improves the policies and practices that affect people's lives.”

The charity recently launched a new pilot project to benefit the inpatients on the mental health Felindre Ward at Bronllys Hospital in South Powys. We spoke to Yasmin to find out more about this important work.

Tell us more about the project

Owen Griffkin, the Powys Patients’ Council facilitator, and the Occupational Therapy (OT) team on Felindre Ward, had been talking to us over the last year about setting up an inpatient advice service. We want to support patients with various issues which are acting as barriers for them wanting to return home and on their recovery process generally. We will continue supporting them once they are at home.

One of the OTs said that some patients, escorted to their homes on day release, had become more anxious upon arriving at a freezing cold home and finding a huge amount of mail / bills. It’s not a very welcoming scenario!

In the long term we would ideally provide support so that people don’t go on the ward in the first place.

How does the support work?

We did a similar project on Felindre Ward about 10 years ago and staff remembered how useful that was supporting people on their recovery journey. At that time a Citizens Advice advisor from Brecon went onto the ward to see people. With Covid we are using video appointments. The ward has iPads available and supports patients to access the platform and then we take it from there.

There’s quite a lot of work we do with the team before we meet the client – every individual can be different. Some people can be uncomfortable about speaking to someone about their issues. In that case the OT will work closely with us to find out what kind of help is available before going back to the person to give a flavour of the advice that could be provided. This usually results in the person then taking an appointment and with a better insight of what help can be provided.

Some of the original project outcomes included – less hospital staff time spent on advice issues, improved patient engagement with treatment, reduced barriers to patient discharge, clients feel more able to stay in their own home and in control of their lives, and improved mental health. The support enables independence, self-management and clients receiving all benefits they are entitled to.

Why was the work of Powys Patients’ Council invaluable in setting up this project?

Owen and the PPC volunteers had been speaking to people on the ward and through this helped identify the need for a direct advice service to support people.

We’ve had a lot of positive comments. One patient said: “I had an appointment with Citizens Advice today and they were excellent. They were able to help with my pet and some money issues.”

How is the project funded and for how long?

This pilot project is funded by a recent Powys Teaching Health Board Small Grants scheme. It lasts for 4 months so will end at the end of May. Through this pilot we will determine the level of demand and the feasibility of the service.

Tell us about some of the everyday issues facing people on the ward and how your service can help?

We identified that it was particularly important to help patients report their change of circumstances with regard to any benefits. Once discharged their benefits can be reinstated with our help. Citizens Advice Powys can also take responsibility for contacting any third parties and putting a hold on any action pending, for example, debt repayments, until that person is able to deal with them. It’s also important to inform the third party that Citizens Advice is helping the person.

We also make sure people are getting all the right benefits – we carry out an Income Maximisation Check – looking at the person’s whole situation. In many cases it can be quite complex – other benefits can be triggered or stopped. We act to make sure there is no detrimental impact on the person.

What is Attend Anywhere?

That is the video platform we use – it is used by the NHS across Wales for consultations with specialists. It’s similar to Zoom or Microsoft Teams but it’s almost like an office set up with a reception, and five interview rooms. It does mean people can have a family member or support person with them in the interview. Language interpreters, including British Sign Language interpreters, can also be included as part of the free service we provide.

Has Covid had an impact on people’s concerns / issues?

There has been a huge increase in people receiving Universal Credit which is a very complex benefit – so people do need support with this. Employment enquiries have also gone up. We are encountering people who have never had to claim benefits or ever had financial difficulties before – so people could become patients on a mental health ward because they’ve never had to deal with that level of poverty before.

Issues are much more complex than they were ten years ago. For example, with a debt client, the level might be the same but the client may owe debts to numerous different creditors where previously it would have been one or two. Then there is the added issue where creditors sell the debt on and on – and trying to unpick it all is a lot of work.

Covid has also added a level of frustration through not being able to get through to departments they need to speak to like the Department for Work & Pensions and energy providers. We can help speed up the process.

We also support people on three-way video or telephone calls with the Citizens Advice advisor doing all the necessary work whilst the client sits in the call. There is no cost to the person themselves for this support.

If people don’t receive the support they need, what could happen to them?

People who have been stressed previously can feel much more optimistic and calm about the situation. Long term if we receive continuation funding we would like to start looking at whether people go back into the hospital if they have received support. If issues have been going on too long it is harder to resolve them so we want to do more preventative work, help people understand what we do and just basically say – don’t be scared about getting in touch.

If we are supporting someone with a Personal Independence Payment (PIP) claim we have to talk about their physical and mental health. We also support people through tribunals and hearings. People open up and perhaps admit for the first time some of the issues facing them which can be very traumatic for them to accept.

What are Citizens Advice Powys’s main priorities outside Felindre Ward?

It’s about early intervention, about making sure our services are accessible and available to everybody in different ways and working out the different access options. We want to build a service where we don’t assume everyone wants face to face or telephone. So we offer video also, some web chat, and contact by email. We want to raise awareness and stop people getting to really complex situations – it’s about averting a crisis.

Which other Powys organisations do you work closely with to provide support to people?

This is happening more than ever before. We’re working with Accessibility Powys to facilitate appointments and advice sessions that are accessible to people with physical or sensory impairments – trying out different methods and equipment. There are a lot of people out there who, if not in receipt of this service, would not have had any advice. There are people who have been shielding and isolating who have not had any support for the past year or so.

In the last 3 months we have had a 20% increase in formal referrals (statutory and third sector agencies) and also seen a 50% increase from mental health teams. So we’ve done a lot of raising awareness sessions – every Wednesday we invite someone to come and talk to our team about the work they do which has been really beneficial – this means we can signpost to other services confidently too.

What are the main challenges of the project?

Client engagement is one of the biggest challenges generally if someone is struggling with their mental health. Sometimes people feel less anxious if they can turn their video off. So it can be small things that help. We try and think outside the box constantly to come up with a solution that works best for that person.

Some of the appointments can be lengthy so we split them into two sessions. If it’s a complicated PIP application you could spend up to 3 hours on that – so it’s managing the length of the appointment to suit the person.

Another challenge is ensuring we have all the right consent forms and paperwork completed. The OT team on the ward have been acting as our administrators in respect of these. It’s still a benefit to them though as they can then concentrate on the work they do best and leave the advice for us. It’s all about team work! So that’s a positive really!

Tell us about some of the most rewarding aspects of this project

The feedback from patients has been very rewarding: for example, one man said after receiving support he felt he was able to go home and contact the utility company and sort out the issue himself. (We would, of course, follow up afterwards to ensure it all worked out).

Knowing that people understand where they can seek help and are better able to manage.

One person was helped to reinstate a PIP claim and said of the advisor: “She was very kind, clear and helpful about my concerns. I found this extremely helpful over a subject I have been worrying about over the last years.”

When you are not working for Citizens Advice Powys how do you enjoy spending your time?

I do a lot of coastal path walking. My aim is to walk the whole coastal path of Wales. So far I’ve done a third of it.

I also volunteer as a Cadet Leader for Newtown Police Cadets and assist the cadets doing their Duke of Edinburgh Award. I recently completed my DoE expedition assessor qualification.

If you want to find out more about Powys Citizens Advice you can contact Yasmin by ringing 01686 617641 or email: manager@powyslca.org

Mental Health Awareness Week 2021 - Nature

Jen Hawkins, PAVO Health & Wellbeing Officer - wild swimming

“Nature is our great untapped resource for a mentally healthy future” The Mental Health Foundation

The theme of this year’s Mental Health Awareness Week (10 - 16 May 2021) is Nature.

The Mental Health Foundation, the charity which has hosted the annual Mental Health Awareness Week since 2000, explains why Nature is the chosen theme:

“Nature is so central to our psychological and emotional health, that it’s almost impossible to realise good mental health for all without a greater connection to the natural world. For most of human history, we lived as part of nature. It is only in the last five generations that so many of us have lived and worked in a context that is largely separated from nature. And it is only since a 1960s study in the United States found that patients who were treated in hospitals with a view of nature recovered faster, that science has started to unpack the extraordinary health benefits.” You can read more here.

Most of us have felt much closer to nature over the past 12 months during the repeated Covid lockdowns, including those of us in our Health & Wellbeing team at Powys Association of Voluntary Organisations. The Mental Health Foundation’s research shows that during the pandemic “45% of us reported that being in green spaces had been vital for our mental health.” During this awareness week they will be showing how “even small contacts with nature can reduce feelings of social isolation and be effective in protecting our mental health, and preventing distress.”

We are particularly lucky in Mid Wales - nature is all around us - sometimes in its grandest forms, but also more subtly on every doorstep, even in the middle of our town centres, nature is always in evidence and there to lift our spirits.

Here’s how we have connected with nature over recent weeks and months.

Jen Hawkins - PAVO Health & Wellbeing Officer

I’ve always loved swimming outdoors, we never called it anything other than swimming when I was growing up but now there are a lot of different names for outdoor swimming as it’s become more popular, especially during the last year with indoor pools and gyms closed. Open water, cold water, wild, are all ways of describing the experience but they don’t really come close. There is something so incredibly peaceful about being totally immersed in water and surrounded by natural beauty. 

The coldness of the water makes sure you are nothing but totally present and in the moment, there simply is no other option. Being aware of the movement of a current or tide, watching falling leaves skim the surface, sharing the space with visiting swallows and swifts in the summer, listening to early morning birdsong, or the drone of a dragonfly next to you, all contribute to the experience. I’ve never swum through the winter before but decided to try this year after reading about the research into mental health benefits.The coldest temperature I’ve managed was 3 degrees, the feeling after coming out from that swim was something close to euphoric. It’s definitely something I’m going to keep up and try as many different locations as possible. It’s lovely to feel that sense of being held and all being well with the world.

Clair Swales - PAVO Head of Health & Wellbeing

This tree outside our house always signals the start of spring and longer, brighter days to come. The pink blossoms always give me so much joy and make me smile. Spring time walks remind me to be grateful for nature, which has its own special way of telling us that no matter what life throws at us we can rejuvenate and renew ourselves. Like the Fifth Step to Wellbeing - pay attention to the present moment. For me it’s paying attention to what nature is telling us at any given time.

Jackie Newey - PAVO Mental Health Information Officer

Every week I go on a local walk in the hills around Llanidloes, or the town itself, and look for wildflowers for the weekly #wildflowerhour challenge on Twitter (also Facebook and Instagram). I’ve learnt so much about wildflowers and nature from the wonderful #wildflowerhour online community. It is one of those unique outdoor-online combos that has proved so successful. 

The walk is an escape from the everyday routine of work, family commitments and the mundane chores of life. It gives me an opportunity to focus purely on the lovely native plants growing all around us at all times of the year. It is as much about my wellbeing as it is about recording nature and learning how to identify the quite subtle differences between wavy and hairy bittercress! Some of my favourite finds have actually been throughout the depths of a hard, cold winter around Llanidloes town, where against all the odds wildflowers such as the beautiful ivy-leaved toadflax, wild strawberry and shepherd’s purse thrive in sheltered nooks at the base of shop doorways, walls and in brownfield sites. Finding these beauties at this time of year (the challenge in winter is to find 10 wildflowers in bloom) is such a boost to my mental wellbeing. I can highly recommend trying this treasure hunt with a difference - and celebrating our feisty yet beautiful nature!

Lucy Taylor - PAVO Startwell Development Officer

Being outside is important for us all, from the fresh air and the feel of freedom it gives, to more measurable benefits in terms of health and activity. Being outside is especially important for children as sometimes the opportunity to go out is not in their hands. Just playing outside, doing what they want to do, is calming, inspiring and healthy.

Playing on the beach on a nice sunny day what could be better for anyone? A lot of adults need to regain the ability to play, to relax and do things that do not have a purpose, but just for their own enjoyment.

Let's go fly a kite!

Owen Griffkin - PAVO Mental Health Participation Officer

It was wonderful to see some new additions on the lake at Llandrindod on a special birthday walk with my dog Honey (5 today!) Along with the Muscovy ducks, terrapins and occasional guinea fowl that have taken up residence there. It has become a really lovely place for a walk.

Sue Newham - PAVO Engagement Officer

Since June last year, I have been walking every morning with my husband, doing a circular route which takes in the riverside in Newtown. It’s been great to see the changes through the seasons. Last week, we saw a goosander doing a flapping/ skating dance across the surface, presumably to panic the fish and enable him to catch one. This morning, so many spring flowers were visible. 

Walking in green spaces has improved my feelings of happiness. The colours in nature seem restful somehow. The other good thing is that we often see the same people out walking, so we have the opportunity to chat and we are getting to know some of them by name. That’s nice too. The picture is from a walk in February - a shadow selfie!

Andrew Davies - PAVO Health & Wellbeing Participation Officer

Me and my wife and my 2 girls try and get out in nature as much as we can, we are very lucky to live in such beautiful surroundings and it helps us reconnect as a family. The girls love to run and play when we are out and about and it is so good for us as parents to see them grow and explore.

We'd love to hear about how you connect with nature. Let us know in the comments below how nature has impacted on your mental health and wellbeing.

Celebrating Side by Side Cymru - mental health peer support in Wales

Artwork by Debbie Roberts engagevisually.co.uk

In March 2019 we lived in a very different world and I attended, in person, the launch of Mid & North Powys Mind’s latest project – Side by Side Cymru. MNPM was one of four local Mind groups in Wales, led by Mind Cymru, to provide this peer support project funded by the Welsh Government.

Here at PAVO we have followed the local project closely and with much interest, as we truly believe peer support to be crucial in the promotion of improved emotional wellbeing for people in Powys. I was, therefore, delighted to be able to attend the virtual celebration of the Mind Cymru project recently to find out more about how this approach had been received across Wales.

What is peer support?

“Peer support is about people using their own experiences to help others. It can happen in a group, on a 1:1 basis and also online as well but for this project we will focus on peer support that takes place face to face in a group situation. It’s about people taking a lead and taking control very much on an equal basis. So it’s a different model from more traditional health and wellbeing models. Through peer support we can feel valued, more connected to others, and more able to take control of our lives.” Mind Cymru, March 2019

“The connection to someone who is interested in similar things to you, or someone who has been through similar experiences, is a connection of equals and really invaluable. It is insightful and totally authentic.” Mid & North Powys Mind, March 2019

Sara Moseley – Chief Executive Officer, Mind Cymru

Peer support is needed more than ever because of what has been happening to us during this pandemic. There’s a huge amount of evidence now about the mental health impact of Covid. Many, many people have been behind closed doors, really feeling low, anxious and lonely. Peer support is about the power of unlocking that through the power of our own experience, kindness and compassion. In its simplest form it’s about using our own expertise and knowledge to support each other emotionally, practically and realise that there are positive, hopeful ways through mental health difficulties.

Covid has also put some of our networks and communities under considerable strain. Younger people in particular are feeling very isolated – being cut off from usual networks has a real detrimental effect on your mental health. As well as the human stories from over the past 3 years of the project we are now in a place to come out of the pandemic stronger than we were before. We have some very practical things that we have to say to decision makers about how we build back stronger and in a way very rooted in communities, and empowering to us as individuals.

Liam Pywell – Senior Peer Support Officer, Mind

Peer support based in the community and led by people with lived experience of mental health issues can be life-changing, and that’s why we believe it should be available to people across Wales.

The project worked with 318 peer support leaders across Wales who in turn supported 3800 people in their communities. We provided over £50,000 in grants to over 221 organisations and groups. We delivered over 100 activities, including training, networking and shared learning.

The hubs facilitated physical and virtual spaces to bring people together to connect, share learning and access some much-needed resources. We wanted the peer leaders to feel more confident, knowledgeable and able to provide peer support to their community and to build on the resources such as our peer support toolkit.

Mind Cymru’s independent evaluator – MEL Research - concluded in their final report that the Side by Side Cymru hub model is an effective way to supportive community based organisations and peer leaders, and that there is a real need for these types of programmes.

The local hub offer centred around three things:

1. Training & shared learning.
2. Funding.
3. Networking opportunities.

Through the evaluation the value of Side by Side Cymru became clear: peer leaders increased their understanding of peer support and the value it provides, and their confidence to deliver improved peer support. The research tells us that peer support improves our sense of wellbeing, increases our sense of hope, and helps us to become more empowered to make decisions and take action.

We also found that peer support can reduce health care costs as people who use less mental health services are often involved in peer support. But peer support is not free – we do need financial resource to support those community groups. Finally, a range of peer support options should be available to support people from all different backgrounds and makes peer support available to all.

Lorna Jones – Peer Support Hub Worker, Mid & North Powys Mind

In a short video Lorna (bottom centre) was joined by one of her volunteers – Lynda (top right), and Bethanie (top left) a peer support leader. Bethanie attended a course with Mind after experiencing post-natal depression and went on to lead a peer support group for parents of children with additional needs. The Side by Side training helped her to be professional, and to learn about specific areas such as safeguarding. She found the toolkit really helpful to refer to for guidance at any time.

Bethanie also said that the training was particularly useful as she made connections with people who could also help her. “It was like peer support for a peer support leader.” We were working with young children but others were in peer support groups for older people who were lonely and vulnerable. We could mix together and create further networks too.

It has also been a lifeline for Bethanie’s own mental health. “It’s something to look forward to, even now with Covid we can still communicate online and it helps us feel less isolated.” The funding paid for the cost of venues.

Lynda helped Lorna massively with the training. She recalled how members of her own family had been dealt with on a very clinical basis in the past, so she felt privileged to be involved with the project which supported people at a community level. “It was great to see the range of people that attended the training – from young Mums, through the age ranges, and a lot of men including a male voice choir.” Lynda realised that they took what they had learnt to all spheres of their life, not just the areas they were representing.

Lorna said that when she read the evaluation report the one thing that really hit her was the huge area that the project had covered in Powys – right from Machynlleth in the north west to the Herefordshire border in the south-east of the county. They worked with 75 groups in total.

“People have said they would be lost without these groups to go to. Our inspiring peer support leaders gave up their time to hold these groups for no other reward other than helping others. They are the unsung heroes in our communities across Britain.”

Bethanie: “Side by Side grew me and my group. It was like the seed we needed.”

Panel discussion

Julian John, CEO of Cwm Taf Mind, chaired the panel discussion with Fateha Ahmed of EYST (Ethnic Minorities & Youth Support team Wales), Zoe King of Diverse Cymru and William Evans – the Young People’s Participation Lead at Mind Cymru. There is only space for very brief sound bites here but they give a flavour of the conversation.

Q1: What does an excellent peer support project look like (and how do you know)?

“It would include a diverse group of people with lived experience who are able to support each other and have empathy. You will see the improved progress in young people if the project is successful.” Fateha Ahmed

“Empathy has to be at the heart of a good peer support project, also coproduction. It’s all about lived experience and shared experience. To know how we did we can consider the distance travelled – how people are before joining the group and how they are since. Have they achieved life goals in certain areas?” Zoe King

“It might look different to different people from different communities / ages. The type of resources and training required will be dependent on someone’s age. It needs to be flexible and accessible, safe and rewarding for a younger person.” William Evans

Q2: What can traditional mental health services learn from community led peer support?

“Lived experience needs to be at the heart of the services they deliver.” Zoe King

“Peer support has a strong bond of friendship. A counselling service may last for 6 – 8 weeks only but friendship may last life long.” Fateha Ahmed

“Traditional mental health experiences are often too rigid and don’t treat people as individuals – young people want the emphasis to be on meaningful connections and a lot less on checklists and criteria.” William Evans

Q3: What roles do organisations like ours have in developing peer support services for the future?

“Many children and young people are fairly creative and innovative in their use of social media to create their own peer support networks. Organisations need to allow them support and resources to enable them to do that safely.” William Evans

“Organisations could connect grassroots’ groups to wider networks with similar aims and goals. Larger organisations could communicate opportunities as well and also provide training.” Zoe King

“EYST has been inviting our volunteers to share their lived experience – how they actually dealt with their anxiety and depression. The young people always say they learn better hearing other people’s stories.” Fateha Ahmed

Q4: How do we connect to the networks of community groups across Wales?

“Doing with and not for. Going into those communities and engaging with people in coproduction and finding out what solutions they have.” William Evans

“We have a community infrastructure (with village halls / groups etc) we also have a County Voluntary Council infrastructure that is supporting those groups across Wales. Is there something we need to do with our CVC partners in reaching community groups?” Julian John

“Yes, absolutely. We work with diverse groups to gain those lived experiences that we then feed back into consultations. CVCs are already well placed to do a lot of this networking.” Zoe King

“We need to find key individuals who are trusted in the community and work with them to provide the best possible service for our young people.” Fateha Ahmed

Angie Darlington, West Wales Action for Mental Health, added – “it is broader than CVCs, mental health development agencies are available across Wales to share out our peer support experiences and reach out into the communities.”

Sarah Moseley said at the end of the session: “It has been a really moving and inspirational afternoon. We want to use this as a spark to think how we sustain, build, grow and strengthen (the peer support approach). One of the most powerful things I have learnt is that there are moments in your life, or things that happen in your life, that make you uniquely ready to connect, share and give support.”

Side by Side resources

Side by Side toolkit and further information

For further information about the Side by Side Cymru Peer Support project email peersupport@mind.org.uk

You can also watch a video about the Side by Side Cymru Peer Support project.

Reading your way to recovery

 

By guest author Janet Mulready
Health & Well-being Librarian, Powys

My work as a Branch Librarian in the early 1980s confirmed my philosophy that libraries can and should be central in offering support to the more vulnerable members of our communities. Libraries offer a safe and welcoming environment, and to paraphrase the author Matt Haig – whose books often reflect his own experiences of dealing with mental health issues – where else can you spend time where you are welcomed as an individual, with no mention of the contents of your wallet?

Janet Mulready, Health & Well-being Librarian in Powys

After more than two decades as a primary teacher, I was delighted to return to my library roots and I was very excited to be seconded recently as Health and Well-being Librarian for Powys. The role is funded thanks to the Welsh Government's Integrated Care Fund, through the Age Well Partnership in Powys; it is part of the project which is focused on scoping and development of community hubs, for these will be a source of early interventions to improve access to health-related information and advice. ​Being appointed to such a stimulating job in my 60s certainly shows that you can age well in Powys!

My job is excitingly diverse and has already involved building strong working relationships with other organisations seeking to improve well-being within the community. The provision of services to people living with dementia and their carers is important to Powys Libraries, and the development and dissemination of resources to support this is a significant part of my role. I am currently working closely with museum staff and library colleagues to devise a system of lending memory boxes and reminiscence hampers to care homes. We also supply resources from the dementia charity Playlist for Life via the collection service at branches to those who request them.

Another important role is to promote the Reading Well scheme (Darllen yn Well). The Reading Agency and Welsh Government have provided Reading Well resources in both Welsh and English, to support living with dementia, adult mental health and children’s mental health. All titles are recommended by health professionals and people with experience of the conditions covered.

I work with a colleague in disseminating this important service, which is linked to public libraries’ ever-expanding work around community health and well-being. The books can be referred via a Book Prescription, and are also available for self-referral via the Powys library catalogue, for collection from the local branch; some are also available as e-books or audio books. The system supports a self-management model, to encourage patients to take an active role in the decisions made around their health and well-being.

The Reading Well for mental health collection provides general information on mental health and well-being, and offers condition-specific titles, support for those difficult experiences which affect us all, such as bereavement and loss, and personal stories. To ensure the collection is accessible to a wide range of audiences, it includes a range of different formats and reading levels. Topics include therapies and approaches, common feelings and experiences, self-help books to support mental health and personal stories. The scheme supports living well and self-care and self-management models. As a community intervention, it also allows for public services to work together to support the health and well-being of their communities.

As well as signposting to sources of professional help and support, it recommends other well-being activities such as reading groups and volunteering opportunities. And of course, libraries are a vital source for the comfort of fiction. To quote Matt Haig again, “There is something about absorbing yourself in a story that can make you feel comforted. One thing about depression is that it is plotless, there is no shape. Stories have shape – and books became my antidepressants.”

A further remit I have is to help library staff to become confident with services that are available in Powys to support residents, so I prepare and disseminate regular ”How to Help with …” resources. The pandemic has meant that part of my work focus is working with colleagues to develop digital access to supportive services. We have initiated an “Ask a Librarian” enquiry service via the website and the loan of blood pressure monitors; many people are concerned about the physical health effects of lockdown and a more sedentary lifestyle due to home working, yet are understandably reluctant to “bother” a health professional, so they can borrow a blood monitor for free and have it delivered to their local branch for them to collect. As lockdown eases, we are looking to provide rooms in selected branches for individuals to have privacy for online medical consultations.

The importance of digital services and new means of communicating has become important for all of us, so my role also involves supporting colleagues in providing health and well-being information and services digitally. A large number of people are experiencing anxiety due to the restrictions on social interaction, and so we are working on producing well-being videos and resources such as adult literature hours, to play a part in reducing isolation.

A typical working day for me at the moment can involve giving a zoom talk on the Reading Well Scheme, applying for funding for well-being projects, making a video, and writing a Help sheet. Every day brings something new and involves me collaborating with some inspiring, committed people. I have a wonderful job and I am very grateful to have the opportunity, in a small way, to make a positive difference to people!

Many thanks to Janet for telling us about her new role as Health & Well-being Librarian for Powys. 

Find out more about the Powys library services on the English & Welsh websites below:

Powys Libraries' Services

Llyfrygelloedd Powys

If you have any queries then please drop them in the comments section below. Alternatively you can contact Janet directly by emailing: janet.mulready@powys.gov.uk or ringing: 01639 845353.

Support for new mums in lockdown – Ystradgynlais Mind

Credit: u_njsabyvh

“There is no way to be a perfect mother, but a million ways to be a good one.” 

Mums Matter, Ystradgynlais Mind

It’s very hard to imagine what it must be like to become a new mum during a pandemic. Some of the words that come instantly to mind – isolating, lonely, anxiety-inducing, and exhausting as well as joyful and exciting. Then there is the grief of not being able to share those all-important first milestones of a baby’s development with close family and friends.

The difficulties of coping with what could anyway be a very difficult time in a woman’s life have, over the past twelve months, been magnified many times over, with very real implications for her wellbeing and mental health. Support is more important than ever.

One of the clients of the Ystradgynlais Mind Mums Matter courses tells us what it has been like for her.

How are you? Just you, not ‘how are you and baby?’ Just you. As a mother, this is something I often forget about. I am separate from my baby, even if a lot of the time I don’t feel that way. We are programmed to be our baby’s everything, and this is not a bad thing. 

I have loved becoming a mother, my son is now 14 months old and it’s been the best, hardest, happiest, most challenging, inspiring, demanding, amazing and emotional 14 months of my life. There are days when I think I feel every emotion possible and other days where I have no idea what I have felt or even what I have done. Some days I feel like I’ve ‘won’ at being Mami to my son and two dogs, at being wife, at being homemaker and all the other personas that I am. Whereas other days I feel like I have failed to be good at anything. 

Learning to accept that some days I feel like I have succeeded, and other days I haven’t, has been hard, and I sometimes still struggle with feeling like I’ve failed. The saying ‘you can’t pour from an empty cup’ is an important message to remember at the moment.

Credit: miapowterr

Lockdown is hard, it’s hard for everyone. We all miss our extended family and our friends. Having a baby, toddler or small child during lockdown brings its own challenges, not only for baby but for us as parents too. When you add a mental health issue into the mix things are even more challenging. 

I have bipolar, which has its challenges on ‘normal’ days. Lockdown has been an emotional roller-coaster for me. Some days I feel like I’m only just surviving, that I’m going to break any minute. At times I feel like sitting in a corner and crying. I feel like I’m not giving my son what he needs, that I’m a bad mother. Having a little time, even if it’s only five minutes, for self-care in whatever form that takes makes these days a little easier to get through. Often I feel guilty about having a hot cup of tea (why do babies know when you have just made a cuppa?), a bath, 10 minutes sat on the sofa, a nap, or even just going for a wee by myself (I’m hoping it’s not just me that doesn’t get to do that very often!). I know I shouldn’t feel guilty and it’s important to take these moments.

My son has congenital cytomegalovirus (cCMV) which means we see several different health professionals. Lockdown has meant that appointments have been cancelled and others we have managed to have via phone call and video call. Although this is a solution, it is not the same as actually seeing a professional. For example, a video call with a physiotherapist was difficult - it was hard for her to assess my son and it was difficult for her to then advise and show me what I need to do at home to help his development.

Jodie and Sophie
Mums Matter facilitators at Ystradgynlais Mind

Being stuck in the house has also been difficult for me. Since having my son I have enjoyed going places more than I used to. I enjoy taking him places where he enjoys, learns, explores and gets to experience new things. I think my son is finding it hard to be in the same four walls, with the same people and same toys all the time. It’s hard to know how to help him overcome this. Coping with being stuck in the house all the time is the main thing I struggle with. I’ve been making the most of the sunshine and spending time in the garden, and I almost enjoy shopping as I get to leave the house! I video call with my Mum most days and have weekly contact with a mental health support group for parents, Mums Matters. Both of which help to get me through each week.

I miss Mami (Mammy/Mummy/Mama) conversations. Conversations where you can say, ‘my little one has started doing/not doing this or that’, and someone says back to you, ‘yeah we went through that stage’, or even, ‘that’s not something we have had to deal with’. I miss conversations that revolve round your small human that you care for and try to understand, conversations where you throw around ideas and suggestions that may help or where everyone is as baffled as you are about what may or may not work to help. I also miss having non-baby related conversations with these same people.

Being part of the Mums Matter course online has helped as it gives me that support. It has helped me to accept that I can’t be perfect. It’s also really helped me to remember that self-care is important and that I need to look after myself to be able to look after my son. I’ve learned a great phrase that I try to remember when I am feeling overwhelmed and there’s no time for me: ‘You can’t pour from an empty cup’. It’s so true, and although it often feels impossible right now, I have to remember to take care of my own mental health, to take care of my son.

The Mums Matter course at Ystradgynlais Mind is currently available virtually via Zoom. It is for mums who have babies / children from birth to 4 years and struggling with their mental health, loneliness, feeling anxious or struggling with being a mum. The 7 sessions over 7 weeks provide mums with a collection of tools and reminders to nurture themselves and keep well. Weekly peer support through Zoom is also available.

For further information ring Jodie on 07946 664 227, email counselling@minditv.org.uk or message the Ystradgynlais Mind Mums Matter Facebook page, Mon – Fri 10am – 4pm.

Prioritising play to promote children’s well-being

by guest authors

Cathy Atkinson & Marianne Mannello

The latest Coronavirus and Me survey undertaken by the Children’s Commissioner for Wales shows a decrease in the numbers of children reporting having spent more time playing. Children aged 7 to 11 in Wales played less in January 2021, compared to May 2020 according to results from a Wales wide survey. Children aged 12 to 18 are also relaxing less compared to May 2020.

Play Wales renew our calls to put play at the heart of supporting children as part of coronavirus recovery, particularly as some return to school. We emphasise a focus on well-being, and a supportive return. There must be dedicated time for children of all ages to play and relax together. This is not a case of choosing between providing for education catch-up or playing – playing offers children the opportunity to keep well and happy. When children are well and happy, they are better equipped to learn and connect.

Here we share a blog written by Cathy Atkinson, a Senior Lecturer in Education and Child Psychology at The University of Manchester, and Marianne Mannello, Play Wales’ Assistant Director. The blog was originally published by Policy@Manchester (The University of Manchester) as part of Mental Health Week.

Credit: Scott Webb

The United Nations Convention on the Rights of the Child Article 31 states children have the right to access play, rest and leisure. With the uncertainty caused by the COVID-19 pandemic, play opportunities are vital to helping children make sense of their experiences, problem-solve, reconnect with their peers, and promote their own wellbeing. In this blog, Cathy Atkinson, Senior Lecturer in Educational and Child Psychology at The University of Manchester, and Marianne Mannello, Assistant Director of Play Wales, consider the important role of children’s play during lockdown in promoting positive mental health, and discuss the ways schools can promote play when they reopen.

• When schools reopen, the focus should be on play and mental health, rather than ‘curriculum catch-up’.
• A blurred approach to learning and play is needed instead, utilising open spaces to maintain physical distancing.
• Guidance from the Departments for Education, based on recent research, would help teachers plan the school day more effectively.
  
  

Why play is important to children’s wellbeing

Last year, before the current lockdown situation, researchers at The University of Manchester, alongside specialist partners, developed a position statement for the British Psychological Society highlighting the importance of play in helping children deal with uncertainty and challenge, regulate emotions and experience fun, enjoyment and freedom. In an accompanying video, children explained why they valued play and how important it was to them.

Play can help promote wellbeing in terms of helping children to:

• Make sense of what has happened to them;
• deal with emotional upset and regain control of their lives;
• experience normality and pleasure during times of upheaval, loss, isolation and trauma;
• foster resilience through promoting emotional regulation, creativity, relationships, problem-solving and learning.

Credit: Islander Images

Play and wellbeing during lockdown

Play has not stopped for lockdown and is as important as ever, as it is children’s way of supporting their own health and wellbeing. Children will find opportunities for play, even in the most adverse of circumstances and parents can support this through:

• Time – enabling children to play freely and valuing play;
• space – creating opportunities for play using everyday objects, and recognising that play can sometimes be noisy and boisterous;
• permission – acknowledging that it is okay for older children to play, for children to play alone, and for children to decide how they want to play.

However, children’s opportunities for play will be affected by their family’s circumstances. For example, in situations where parents are expected to work, where there is limited indoor or outdoor space, or stress from loved ones being distant or unwell, opportunities might be compromised.

Transition back to school

There have been recent calls by leading academics for schools to prioritise play when they reopen. This may be particularly important for children who have experienced difficult circumstances during lockdown, such as parental separation, loss, grief or trauma.

To highlight the importance of play, the UN Committee on the Rights of the Child published General Comment 17, highlighting how play provides a means by which children can externalise difficult, unsettling or traumatic life experiences and offer specific guidance to schools as to how this might be achieved.

Before the coronavirus outbreak, concerns about diminished opportunities for play, especially for vulnerable groups such as children with special educational needs and disabilities, and children living in poverty, had already been highlighted because curriculum pressures have led to reduced opportunities for play in schools.

Children cannot learn effectively when they are stressed or overwhelmed. Studies of brain development indicate that children who have experienced trauma find it difficult to maintain attention, remember things, manage behaviour and regulate emotions, and can have mental health issues in adolescence and adulthood. There is continued uncertainty about exactly when children will return to school and this may well vary across the different countries and regions of the United Kingdom. However, we would ask that when schools do reopen, that it is recognised that this is not the time to play ‘curriculum catch-up’. Children need time to readjust to school life and reconnect with teachers and peers, rather than worrying about learning.

How schools can support wellbeing through promoting play

The challenge now for the Government and devolved nations is to balance reopening schools and keeping children, parents and teachers safe, whilst maintaining the benefits of play to wellbeing. In light of guidance from the Office for National Statistics, that children are just as likely to catch the virus, any planned return would need to be handled extremely carefully. But extreme physical distancing measures such as those pictured in France last year will inevitably do more harm than good to already vulnerable children.

Credit: Scott Webb

We suggest that the Departments for Education across the UK could produce short-term guidance for schools to help them support children’s wellbeing and physical safety. This guidance could include UN advice, as noted in General Comment 17, in the following four areas to promote children’s right to play.

1. Physical environment of settings – The playground environment can be adapted to enable safe, creative play, and make the school more play-friendly. Schools can use fun equipment and/or visual referencing to promote physical distancing. Where feasible, could the playground be available for the whole day to enable extended outdoor access for more children, or could the school field or forest school site be better utilised?
2. Structure of the day – The guidance could support schools to find ways to develop a more responsive and flexible structure to allow teachers to adapt to the needs of their pupils and provide more time and opportunity for outdoor play and learning.
3. Curriculum demands – Given what we know about the impact of trauma and upheaval on learning, we would recommend that curriculum demands on children and teachers be reduced, to allow opportunities for play, emotional growth and social connection. Child-led learning experiences which facilitate free play could ensure no child gets left behind. As cultural and arts activities have been restricted during lockdown, how can these be reintroduced via school curricula?
4. Educational pedagogy – The UN describes the importance of learning environments being active and participatory. Schools can make playful activities central to learning, for older children as well as for those in the early years. Recent research from The University of Manchester found that where the boundaries between schoolwork and play were more ‘blurred’, children felt a greater sense of control over their own learning experience.

Playing is the most natural and enjoyable way for children to keep well and be happy. It is their way of supporting their own health and wellbeing. It is vital that efforts to improve wellbeing in schools should focus on providing sufficient time and space for play.

The UN states that, for children, play “can restore a sense of identity, help them make meaning of what has happened to them, and enable them experience fun and enjoyment.” Recognising the importance of play at this point in time could be an enormous step forward, in terms of protecting the mental health and wellbeing of our children, and of future generations.