Celebrating Side by Side Cymru - mental health peer support in Wales

Artwork by Debbie Roberts engagevisually.co.uk

In March 2019 we lived in a very different world and I attended, in person, the launch of Mid & North Powys Mind’s latest project – Side by Side Cymru. MNPM was one of four local Mind groups in Wales, led by Mind Cymru, to provide this peer support project funded by the Welsh Government.

Here at PAVO we have followed the local project closely and with much interest, as we truly believe peer support to be crucial in the promotion of improved emotional wellbeing for people in Powys. I was, therefore, delighted to be able to attend the virtual celebration of the Mind Cymru project recently to find out more about how this approach had been received across Wales.

What is peer support?

“Peer support is about people using their own experiences to help others. It can happen in a group, on a 1:1 basis and also online as well but for this project we will focus on peer support that takes place face to face in a group situation. It’s about people taking a lead and taking control very much on an equal basis. So it’s a different model from more traditional health and wellbeing models. Through peer support we can feel valued, more connected to others, and more able to take control of our lives.” Mind Cymru, March 2019

“The connection to someone who is interested in similar things to you, or someone who has been through similar experiences, is a connection of equals and really invaluable. It is insightful and totally authentic.” Mid & North Powys Mind, March 2019

Sara Moseley – Chief Executive Officer, Mind Cymru

Peer support is needed more than ever because of what has been happening to us during this pandemic. There’s a huge amount of evidence now about the mental health impact of Covid. Many, many people have been behind closed doors, really feeling low, anxious and lonely. Peer support is about the power of unlocking that through the power of our own experience, kindness and compassion. In its simplest form it’s about using our own expertise and knowledge to support each other emotionally, practically and realise that there are positive, hopeful ways through mental health difficulties.

Covid has also put some of our networks and communities under considerable strain. Younger people in particular are feeling very isolated – being cut off from usual networks has a real detrimental effect on your mental health. As well as the human stories from over the past 3 years of the project we are now in a place to come out of the pandemic stronger than we were before. We have some very practical things that we have to say to decision makers about how we build back stronger and in a way very rooted in communities, and empowering to us as individuals.

Liam Pywell – Senior Peer Support Officer, Mind

Peer support based in the community and led by people with lived experience of mental health issues can be life-changing, and that’s why we believe it should be available to people across Wales.

The project worked with 318 peer support leaders across Wales who in turn supported 3800 people in their communities. We provided over £50,000 in grants to over 221 organisations and groups. We delivered over 100 activities, including training, networking and shared learning.

The hubs facilitated physical and virtual spaces to bring people together to connect, share learning and access some much-needed resources. We wanted the peer leaders to feel more confident, knowledgeable and able to provide peer support to their community and to build on the resources such as our peer support toolkit.

Mind Cymru’s independent evaluator – MEL Research - concluded in their final report that the Side by Side Cymru hub model is an effective way to supportive community based organisations and peer leaders, and that there is a real need for these types of programmes.

The local hub offer centred around three things:

1. Training & shared learning.
2. Funding.
3. Networking opportunities.

Through the evaluation the value of Side by Side Cymru became clear: peer leaders increased their understanding of peer support and the value it provides, and their confidence to deliver improved peer support. The research tells us that peer support improves our sense of wellbeing, increases our sense of hope, and helps us to become more empowered to make decisions and take action.

We also found that peer support can reduce health care costs as people who use less mental health services are often involved in peer support. But peer support is not free – we do need financial resource to support those community groups. Finally, a range of peer support options should be available to support people from all different backgrounds and makes peer support available to all.

Lorna Jones – Peer Support Hub Worker, Mid & North Powys Mind

In a short video Lorna (bottom centre) was joined by one of her volunteers – Lynda (top right), and Bethanie (top left) a peer support leader. Bethanie attended a course with Mind after experiencing post-natal depression and went on to lead a peer support group for parents of children with additional needs. The Side by Side training helped her to be professional, and to learn about specific areas such as safeguarding. She found the toolkit really helpful to refer to for guidance at any time.

Bethanie also said that the training was particularly useful as she made connections with people who could also help her. “It was like peer support for a peer support leader.” We were working with young children but others were in peer support groups for older people who were lonely and vulnerable. We could mix together and create further networks too.

It has also been a lifeline for Bethanie’s own mental health. “It’s something to look forward to, even now with Covid we can still communicate online and it helps us feel less isolated.” The funding paid for the cost of venues.

Lynda helped Lorna massively with the training. She recalled how members of her own family had been dealt with on a very clinical basis in the past, so she felt privileged to be involved with the project which supported people at a community level. “It was great to see the range of people that attended the training – from young Mums, through the age ranges, and a lot of men including a male voice choir.” Lynda realised that they took what they had learnt to all spheres of their life, not just the areas they were representing.

Lorna said that when she read the evaluation report the one thing that really hit her was the huge area that the project had covered in Powys – right from Machynlleth in the north west to the Herefordshire border in the south-east of the county. They worked with 75 groups in total.

“People have said they would be lost without these groups to go to. Our inspiring peer support leaders gave up their time to hold these groups for no other reward other than helping others. They are the unsung heroes in our communities across Britain.”

Bethanie: “Side by Side grew me and my group. It was like the seed we needed.”

Panel discussion

Julian John, CEO of Cwm Taf Mind, chaired the panel discussion with Fateha Ahmed of EYST (Ethnic Minorities & Youth Support team Wales), Zoe King of Diverse Cymru and William Evans – the Young People’s Participation Lead at Mind Cymru. There is only space for very brief sound bites here but they give a flavour of the conversation.

Q1: What does an excellent peer support project look like (and how do you know)?

“It would include a diverse group of people with lived experience who are able to support each other and have empathy. You will see the improved progress in young people if the project is successful.” Fateha Ahmed

“Empathy has to be at the heart of a good peer support project, also coproduction. It’s all about lived experience and shared experience. To know how we did we can consider the distance travelled – how people are before joining the group and how they are since. Have they achieved life goals in certain areas?” Zoe King

“It might look different to different people from different communities / ages. The type of resources and training required will be dependent on someone’s age. It needs to be flexible and accessible, safe and rewarding for a younger person.” William Evans

Q2: What can traditional mental health services learn from community led peer support?

“Lived experience needs to be at the heart of the services they deliver.” Zoe King

“Peer support has a strong bond of friendship. A counselling service may last for 6 – 8 weeks only but friendship may last life long.” Fateha Ahmed

“Traditional mental health experiences are often too rigid and don’t treat people as individuals – young people want the emphasis to be on meaningful connections and a lot less on checklists and criteria.” William Evans

Q3: What roles do organisations like ours have in developing peer support services for the future?

“Many children and young people are fairly creative and innovative in their use of social media to create their own peer support networks. Organisations need to allow them support and resources to enable them to do that safely.” William Evans

“Organisations could connect grassroots’ groups to wider networks with similar aims and goals. Larger organisations could communicate opportunities as well and also provide training.” Zoe King

“EYST has been inviting our volunteers to share their lived experience – how they actually dealt with their anxiety and depression. The young people always say they learn better hearing other people’s stories.” Fateha Ahmed

Q4: How do we connect to the networks of community groups across Wales?

“Doing with and not for. Going into those communities and engaging with people in coproduction and finding out what solutions they have.” William Evans

“We have a community infrastructure (with village halls / groups etc) we also have a County Voluntary Council infrastructure that is supporting those groups across Wales. Is there something we need to do with our CVC partners in reaching community groups?” Julian John

“Yes, absolutely. We work with diverse groups to gain those lived experiences that we then feed back into consultations. CVCs are already well placed to do a lot of this networking.” Zoe King

“We need to find key individuals who are trusted in the community and work with them to provide the best possible service for our young people.” Fateha Ahmed

Angie Darlington, West Wales Action for Mental Health, added – “it is broader than CVCs, mental health development agencies are available across Wales to share out our peer support experiences and reach out into the communities.”

Sarah Moseley said at the end of the session: “It has been a really moving and inspirational afternoon. We want to use this as a spark to think how we sustain, build, grow and strengthen (the peer support approach). One of the most powerful things I have learnt is that there are moments in your life, or things that happen in your life, that make you uniquely ready to connect, share and give support.”

Side by Side resources

Side by Side toolkit and further information

For further information about the Side by Side Cymru Peer Support project email peersupport@mind.org.uk

You can also watch a video about the Side by Side Cymru Peer Support project.

Side by Side Cymru project – Mid Powys Mind

Launch of the Mid Powys Mind Side by Side project

A couple of weeks ago I attended the evening launch of Mid Powys Mind’s latest project – Side by Side Cymru. The project has received support from Mind Cymru and the Welsh Government. 

We learnt more about the initiative from various members of Mind staff who spoke on the night. They were joined by Kirsty Morgan, Assembly Minister for Brecon & Radnorshire in the Welsh Government. 

Mary Griffiths, Development Manager, Mid Powys Mind 

Mid Powys Mind is very excited and proud to be part of Side by Side Cymru. We are one of four hubs in Wales led by Mind Cymru. The MPM hub covers Mid and North Powys, and supports peer support. Peer support has always been an integral part of the services MPM offers. The connection to someone who is interested in similar things to you, or someone who has been through similar experiences, is a connection of equals and really invaluable. It is insightful and totally authentic. 

The support of peers can help people recover and to form friendships – so important for mental health and wellbeing in an increasingly isolating world. People who have used our services have told us time and again how they have benefited from the support of others who have really walked in their shoes. That is why MPM jumped at the chance to be involved in this project. Not just to support people who have their struggle with mental health in common, but all peers no matter what their shared interests or shared histories.

Powys is the most sparsely populated county in mainland UK and as a result of this we are often lacking in access to statutory services. This has been a huge driver in creating a large and active voluntary sector from sports clubs, to Young Farmers to Women’s Institutes, to village halls and U3A to name but a few. Powys has a lot of really good peer support going on already. MPM has seen the value of peer support and we believe if there is anything we can do to help it thrive even more we should be doing it.

Rachel Wyatt, Senior Project Officer, Mind Cymru

Peer support is about people using their own experiences to help other people and it’s great to hear there is so much diversity. It can happen in a group, on a 1:1 basis and also online as well but for this project we will be focusing on peer support that takes place face to face in a group situation. It’s about people taking a lead and taking control. So it’s a different model from more traditional health and wellbeing models because it is people in control and taking the lead very much on an equal basis. Through peer support we can feel valued, more connected to others, and more able to take control of our lives. 

Side by Side fits really well with Mind’s national strategy – Building on Change – the aim is for 100,000 people to access peer support opportunities across England and Wales by 2021. The project is very much based on previous work done in England that we are bringing into Wales. It was the biggest research project carried out on peer support in the UK as a whole. Over £3 million was invested, to understand some of the values that underpin peer support and to work out what people need. 

One of the important findings which is relevant to our work here in Wales is that peer support is often within groups and people who take responsibility and control in the groups and publicise the work they are doing – these doers really need a little bit of extra support themselves. So these are the people we will be targeting as part of this project.

Something else that also came out was the development of a toolkit for peer support which is freely available on the Mind website. It gives practical help, advice and some interactive activities in terms of things you can do practically in your groups to support each other.

Our aim with Side by Side Cymru is to improve the wellbeing of people experiencing mental health problems by improving the availability and quality of peer support available in the community. MPM is one of 4 local Minds working with Mind Cymru to deliver this project. Newport Mind, Merthyr & the Valleys Mind and Aberystwyth Mind are working across their areas of Wales.

We will be running a range of events and shared learning training workshops for people to cover different topics identified locally as being really important in relation to small community groups. Small grants are also available to start and develop groups.

The target audiences are people who are already delivering peer support within a group. We’d also like to hear from people not currently delivering peer support but are interested in doing so. There will be some specific targeted work involving people who are Welsh speakers, rural communities (farmers and the farming community), Black, Asian and minority Ethnic (BAME) communities and a male audience as well.

There is an independent evaluation as part of this project. We intuitively know there is something really helpful about peer support but trying to prove it is quite difficult. There has not been much research around peer support, so this is a really good opportunity to do some here in Wales.

One of the things that will be measured is people’s confidence – will it be improved by what is being delivered in Mid Wales, and if it has a knock-on effect for community groups in Powys. Does peer support improve people’s wellbeing, connections and hope for the future?

Lorna Jones, Side by Side Cymru Officer, Mid Powys Mind

I met with a lady the other day who said – we don’t do anything. We only meet and have coffee. So I said I would come along and take a look. So I went, and there were between 15 and 25 people having coffee in a village hall with two ladies thinking they were doing nothing amazing. To me they were doing everything amazing. They were giving up their time. Nobody was paying them any money. And the people having coffee were very isolated in a very rural village. What people do voluntarily is unrecognised. This project is a way of recognising this. 

What has really blown me away is that one of the first questions people ask is “what is the training I can have to help my group / club?” The stigma of mental health is much less than it used to be and people are willing to admit that if we meet that’s good for our mental health. This is as much about preventing poor mental health as us coming in later to support that mental health. We all have mental health.

It can be a rugby club… a dementia group… a carers' group… or a Parkinson’s group… all the Young Farmers' Clubs in Radnorshire have signed up. You can also set up new groups in your community -  there are grants to support the group to continue. We cannot go in to the workplace. However, if a social group is set up outside the workplace where people can meet that is fine.

My vision is to set up a community of support within support, so in each group there is always someone who can help someone. Some organisations are offering use of their venue free of charge. That’s huge. A big cost of running your group is the cost of a venue.

People are so willing to help. But we need to network that information. Over the next 15 months we will make those connections in the community so that we can all support and help each other.

If you have decided that your group would like to apply or have some support you can register your interest online and apply for a grant if you want one. There is a list of eligible items. Cash is not available or funding to pay members of staff. Items will be given out at quarterly network events. Attendance at these is not compulsory, but if you invest your thoughts and ideas at an event we can build on this.

I work in the Wellbeing Centre in Llandrindod. I can also come out to your group and talk to you. The training will incorporate the tool kit but also confidentiality, safeguarding, boundaries, self-care and basic mental health awareness. We will signpost people to further training as required.

Kirsty Morgan, Assembly Minister, Welsh Government

There is often a place for prescription drugs and medicine to support people but there are other options that should and could be made available to individuals to help them recover and maintain their mental health and wellbeing. This project is part of the attempt by Welsh Government to support alternative approaches to mental wellbeing by looking at different ways in which we can support people recover and maintain good mental wellbeing.

Kirsty Morgan AM speaks at the Side by Side project launch in Llandrindod Wells

I know that after a really stressful day at work I can rely on the fellow mums and dads and the kids at the Young Farmers’ Club to raise me up and help me forget about all that stress and strain. I know that there is nothing better for my mental health than forgetting about what has happened during the day and spend the evening painting sets, sewing costumes and making cups of tea and coffee for amazing young people that live in our community. That makes me feel like a human being. That makes me feel normal and well to be in that group.

I know how valuable these organisations, and being part of something, can help you significantly. If we can help more groups become even more adept and more sustainable and better at providing that network of support that can only be a good thing. There is a fantastic network of volunteers who are doing amazing things day in day out.

I am absolutely convinced that providing an evidence base to what’s happening here will be really important in informing public policy in this area moving forward.

For further information about the Side by Side Cymru project contact Lorna Jones at Mid Powys Mind by ringing 01597 824411 or emailing hub@midpowysmind.org.uk or check out the Side by Side Cymru Facebook page.