Showing posts with label DWP. Show all posts
Showing posts with label DWP. Show all posts

Friday, 25 July 2014

Volunteering while getting benefits


The title of this blog post is also the title of a UK government guide which can be downloaded from the internet here. Quite simply it lays down the rules around volunteering whilst on benefits:

"If you’re getting State benefits, you can be a volunteer and, in nearly all cases, your benefits will not be affected. However, there are some cases where your benefits can be affected, for example, if you get a subsistence allowance or if you’re doing what someone else would normally be paid for."

And yet people who are receiving benefits are sometimes made to feel – by society, by people they know, by workers at the Job Centres they attend - that if they are able to volunteer then of course, they should also be able to work.

Jan Rogers receives benefits and volunteers for the mental health charity Ponthafren Association at the organisation’s centre in Newtown. She is not in paid employment at this time. She wanted to share with a wider audience the value of volunteering to her.


Without going into detail of what, why and where, I will just say, when I first became unwell, I could see NO way out. Well, in fact, I did find a way out and that was to end “it”. To put a stop to the hassle and grief I was causing to my family.

Sometimes I think I functioned quite well in the sense that food was always on the table and the house and children were always clean, at least when they left the house. But I wasn’t living, it was existing - going through the motions. When my husband was in work I would quickly do housework and what I needed to do and then hide. Sometimes I would lie under the bed all day watching the clock so that I would be out in time to cook tea and pick the children up. This was harder when I had younger children so I used to draw the curtains and sit and interact with the children hoping that they would not pick up on how I was feeling. This worked for a few years but every time one of the children called me “Mum” I cringed.

One day Hell had just opened its doors. I went from a person who was out going and enjoyed life to almost becoming a recluse. Although I made sure the children and hubby were fed and looked after, I was sinking into a dark, dark world. I did not bathe or eat until I was so light headed I couldn’t function. My husband gave up his job and although he was amazing he was looking for answers to the complete change in a person, which to him had happened “moreorless overnight”.

I was regularly taken to hospital and sectioned and stays varied from one to three months in the early days. As time went on, with my husband’s and family’s support, and the help of the Community Mental Health Team, I was able to function slightly better, but each day was a struggle for us all. Sometimes I would leave the house and seem and feel okay, drop the children off at school but then, a dark cloud would surround me and I had no idea where I was or who I was. My husband would phone the police after looking, sometimes all night, and I would be back in hospital on a section.

I felt my life was over and although I was lucky in a sense that I had a great supporting family, this in one way was making me feel more guilty as I was letting them down and just causing more grief to the people that were at my side and holding me up. 

Jan in the garden at Ponthafren

All I kept thinking was why, why, why?

About six or seven years ago, I took my youngest sons to football practice. I was standing on my own, not really wanting to get into a conversation with people. There was a woman there, who I did not know, she seemed to be in charge of the football sessions. I remember the day well as it was windy, cold and raining, real football weather. The lady came across and introduced her self as Nicky Morris and explained that she was chair of the junior football club, Newtown Whitestars.

We got chatting and this was the first time I had really trusted anybody outside my family. I felt I could talk to her as if I had known her for a lifetime. Nicky went on to explain that she was Co-ordinator of Ponthafren Association , which was a registered charity for people with mental health problems. She suggested I pop in for a chat and see what Ponthafren had to offer for me. I was always very much into my sport, gym and running as well as a very keen gardener.

I went along to Ponthafren with my hubby and met up with Nicky and Jane and chatted. I said I would love to come along to the centre but needed a purpose. Nicky suggested volunteering for a couple of hours a week to go along with people to the gym. So, this is what I did. Mike was always outside at least half an hour before I was due to be picked up as he was very worried.

Over quite some time, I was volunteering more hours and even though some days I would not go in as I was feeling unwell, generally I felt a small sense of achievement. As time went on Mike was feeling more relaxed and able to take a step back. He too then became a volunteer at Pont. I think we sometimes forget about the person that has cared and carried someone with mental health illness for such a long time and almost expect them to pick up where they left off in a sense. This is not reality as when Mike gave up his job he gave up his “Life”, in the sense of friends, associates and a social life.

At Ponthafren I can be myself, I don’t have to pretend at all. If I want to smile I can, but at the same time if I don’t feel like smiling or putting on a face for people, then I don’t feel like I have to.

Some of the things I deal with every day and night:

  • Sense of worthlessness.
  • Scrounger to society/tax payers as I should be working.
  • Sense of letting my family and friends down.
  • Voices.
  • Hallucinations, to the degree of bathing in shorts and tee shirt and dressing inside a large robe that is zipped up the front, from my neck to the floor. 
  • Not sure if I’m having a conversation with real people or not.
Some of the things I feel and have partly gained by volunteering are:
  • Self worth.
  • Confidence.
  • Self-belief.
  • Passion for believing in my principles and beliefs and the fact that they do count.
  • Helping my family understand my “illness”.
  • Helping “ME” understand my “illness”.
  • Being “Who” I am, and most of the time thinking, “others will have to accept me as is”.
I have been nominated and won awards but although I am very grateful for being put forward and gaining these awards I personally (it has taken me years to accept praise and to be honest, deep down, I still cringe even though I smile) feel that these awards I accept are on behalf of every volunteer I know. This, I feel, is how I am able to accept them.

Why do I volunteer?

At the moment I don’t think I would be able to cope with employment. I’m not sure it would be fair on an employer or me. I have never and never will be happy with myself drawing benefits but volunteering goes some way for me to prove my worth to Government, Job Centre, tax payers. I have received, and continue to do so, so much help from Ponthafren – and this is one thing I can do to part pay back for all I receive.

I volunteer in the garden because I am a keen gardener and others get so much out of the garden at Ponthafren. Some people have no garden or in fact a seating area. With volunteering, if somebody asks me to do something, I do not have a problem asking them to write it down if I’m not sure what they said and they don’t mind doing this. As an employee, this would not be okay.

Basically I volunteer because I can. I have failed so much over the years, in most aspects of my life. Volunteering, I feel I do not fail at all. Maybe I can make a difference to someone else!!!!

‘Volunteering’ = Coping , Living, Surviving, so really it is NOT Volunteering in my Mind or Heart !!!!!!

Thank you, Jan, for sharing your volunteering story with us. If you would like to find out more about volunteering, contact the Powys Volunteer Centre which is managed by Powys Association of Voluntary Organisations.

Are you on benefits? Do you volunteer? Tell us about your experiences in the comments box below.

Sunday, 9 March 2014

White Rabbit Number Six: John Drake's Mental Health Blog - 2


2. I Am Not a Number

Going to the Job Centre when I was too ill to work seemed like a contradiction in terms – but this was the brave new world of New Labour and quite a lot had changed in the twenty years since I had last needed to claim any sort of state benefit, as I was soon to discover...

I will skate over the many mistakes that seemed designed to disorient me (the person on the end of the phone who told me that he couldn’t register me unless I could remember the postcode of the flat I lived in twelve years earlier – and then sent all my information to the wrong address anyway; the meeting in the open-plan Job Centre where I was asked how my depression affected me on a day-to-day level – as if my doctor would give me a consultation in the waiting room; the letter from the DWP telling me to send them a sick note by a date two months prior to the date of the letter)...

I realised that I had, in fact, fallen to the bottom of the rabbit hole and was now in Wonderland.

The good news was that I was referred to the government’s back-to-work programme. I was obliged to see an advisor for five sessions – and ended up seeing him every month for a year and a half because I found him so helpful. He did his best to make sense of the system for me... but there was still the hurdle of the Work Capability Assessment to be overcome.

I was interviewed by an elderly gentleman who I assumed was a retired GP. It was all over very quickly. He asked me some questions that seemed odd – such as what did I watch on TV? (Films and documentaries mostly, not that it’s anyone’s business) – but nothing at all about my symptoms, what had happened in work or what was stopping me going back.

To be honest, since I spent most of the 20 minutes I was there in floods of tears I assumed that he didn’t want to prolong the agony by asking unnecessary questions.

How wrong I was!

A month later I was told to attend a follow-up, work-focused interview, with the same doctor who assessed me the first time. He seemed surprised when I told him that I hadn’t received the results of that assessment yet, but said to put it down to bureaucratic bungling.

When another month went by and I still hadn’t got my result through I started to get very anxious and asked my advisor to help. He made a few phone calls and gave me the bad news. I hadn’t scored enough points to stay on Employment and Support Allowance (ESA) and I shouldn’t have been asked to attend the second interview.

A week later I got the official result through the post. The doctor had assessed me as finding life difficult due to being unable to cope with unexpected changes and had awarded me 6 points, 9 less than I needed to stay on ESA. I would no longer receive any benefits and had to talk to my employer about returning to work.

This “talk” had better be quick, since I now had no money coming in, but it was pointless anyway. There was no way my employers would allow me back to work without the say-so of my GP and there was no way she would pass me as fit for work... Desperately confused, I contacted my advisor who told me I should appeal since the decision was clearly wrong; and helped me draft the letter. At the worst, I would still get sickness benefit until it went to tribunal.

As it happened I didn’t need to go to tribunal because I got a phone call one day from someone who worked for the Department for Work and Pensions (DWP) who, after going through each of the reasons why I thought the assessment was wrong, told me that the decision would be overturned. About a month later I was told officially that I had been placed in the work-focused group, my benefit was increased and I also got a hefty back-payment.

Now that I was starting to feel a bit better about my situation, my advisor came with me to meet with my employer and negotiated some part-time work that I could do while still claiming ESA.

A year went by before they wanted to re-assess me. By now, the back-to-work programme had come to an end and I was no longer in touch with the advisor. Worried about the new assessment, I started obsessing about what had gone wrong the first time. Why had the doctor only given me six points? Things were not helped by watching the remake of ‘The Prisoner’ on TV. Perhaps I was Number Six, prisoner of a bureaucratic bungle that had turned into a nightmare...

Fortunately, just at that point along came Do-It-Yourself Futures...

Friday, 2 November 2012

And what is PIP exactly....?


And this has nothing to do with apples, rather more to do with Welfare Reform. This is another area where much more information is needed according to the recent consultation work done by my colleagues on the draft Mental Health Vision for Powys.

So, we are calling all Powys organisations who want to find out more about Personal Independence Payment and the Universal Credit. If you work with individuals who are in receipt of benefits, and want to find out more about the changes being made in 2013, then an event we have just organised with the Department of Work and Pensions is for you. Get your diary ready now....

Date - Friday 7 December 2012
Time - 9.30am - 12.30pm
Venue - Plas Dolerw, Milford Road, Newtown, SY16 2EH

The speaker is Ken Davies - Partner Support Manager, DWP National Partnerships Team. 

You can find out more about the event and how to book your place here.