Showing posts with label beyond medical debate. Show all posts
Showing posts with label beyond medical debate. Show all posts

Tuesday, 7 January 2020

Compassionate Mental Health conference, Hereford, November 2019


by Sue Newham
Health & Wellbeing Engagement Officer, PAVO

I went along to this conference with only a vague idea of the content, but being told by my colleagues at Powys Association of Voluntary Organisations that it would introduce me to some new ideas and give me plenty to think about. They were right!

I was asked on arrival if I’d come to do the yoga. I hadn’t, but it was certainly a novel start to the day!

Novelty continued with an opportunity to engage in “Compassion Circles”. Andy Bradley encouraged us to get into threes and listen to each other “with a quiet mind and an awake heart.” Andy’s concern is that our systems, with time pressures and outcomes, can make people feel as if they don’t really matter. Really listening to people can change their feeling of being valued for who they are.

The keynote speaker was Robert Whitaker, author of books about mental health treatment called “The anatomy of an epidemic” and “Mad in America.”

Robert outlined the history of dealing with mental health issues in the USA. He explained that, in the 18th century, the prevailing view and practice was to treat people experiencing mental breakdown as having lost their humanity. Sufferers were treated like animals and subjected to barbaric treatments. At the end of the 18th century, the Quakers set up homes where sufferers were seen as “children of God” and treated with compassion in pleasant surroundings. Records of the day suggest that there was a good rate of recovery following this treatment. In the 1980s, the American Psychiatric Association Diagnostic and Statistical Manual of Mental Disorders 3 became the standard handbook of psychiatric diagnosis. It heralded a shift towards the disease model of mental health. Whitaker sees this as creating a line between “normal” people and “abnormal” people, where stresses associated with life become illnesses to be treated.

I found myself pondering the role of the American Psychiatric Association and the drugs companies. Is it likely that companies that have seen a 50 fold increase in income from mental health drugs would be open to other ways of treating people without drugs? If drug companies fund the American Psychiatric Association, which apparently they do, is it possible for that organisation to embrace different treatment models?

Early disease models of mental illness seemed to be based on the theory that chemical imbalances within the brain lead to symptoms of illness that can be corrected by medication. Although the theory had been found as inadequate as early as the mid 1980s, it has still continued as an urban myth. This was a shock to me, as before this conference, I too would have said that mental illness was to do with chemical imbalances in the brain.

Robert Whitaker challenged the prevailing disease model as an effective means of treating mental distress. He said that, if the model was correct, overall recovery rates should now be going up as medication successfully treats people’s illnesses. On the contrary, statistics record that 1.1 million people were on long term disability in the USA due to mental illness in 1987. That number is currently around 5 million. There is also evidence that full recovery is more likely amongst unmedicated groups than medicated groups.

Whitaker’s overall message is that the medication model has not achieved the outcomes expected and has failed to produce scientific evidence that it is improving the mental health of the American public. He mentioned several projects that had shown success in non-medical treatment of mental distress: the Soteria project; the Norway Medication Free Inititative; the Open Dialogue's model developed in Finland.

He suggested that we need to change the script, seeing struggles as a part of being human, rather than a sign of illness which may see sufferers relying on medication for the rest of their lives. He advocated social support, listening and giving people a sense of hope. Psychological therapies also have a role to play in helping people work through traumas and distress. 





During another session, I heard from Margaret Jordan about the benefits and practice of Sensorimotor Psychotherapy, which treats people holistically rather than focusing on the brain. A phrase which Margaret used seems to me to be important and worthy of more thought. She said, “Trauma is an action that needs to be completed in order for the symptoms to reduce.”

I observed an Open Dialogue session in which a course participant agreed to talk about a personal experience and we observed how Open Dialogue can help people to work through difficulties they were facing. The practitioners were Yasmin Ishaq and Rai Waddingham. This was an extremely interesting, but in many ways simple intervention, involving taking time with people and those close to them and listening to them. Yasmin is a social worker and psychotherapist and Open Dialogue lead for NHS Kent. This seems like a very positive way that people can be given time, listened to and enabled to process and work through their difficulties.

I enjoyed listening to Ruth Young from Jamie’s Farm talking about residential weeks for troubled young people, which involve real farm work and responsibilities, as well as group times for talking. This is how the website describes the programme, “Jamie’s Farm acts as a catalyst for change, enabling disadvantaged young people to thrive academically, socially and emotionally. We do this through a unique residential experience and rigorous follow-up programme, combining farming, family and therapy.”

So what was my overall impression of the day? As someone with only one year’s experience in the mental health field (in other words, a complete novice) I found it thought provoking! It challenged some views that I had held as facts, without really knowing why.

It shocked me to hear that people with severe mental illness have a reduced life expectancy, often dying between 10 and 25 years before their peers. The World Health Organisation suggests that some physical illness may be exacerbated by antipsychotic and related drugs.

Overall, it left me with a feeling that profits and big business set the agenda for many of the ways we tackle everyday life. I feel that society has a duty to question why things happen as they do and whether, in fact, science is being manipulated for the benefit of those making the most money.

I also feel that better listening and focusing on the whole person could help many people experiencing mental health issues. “Compassionate” sounds like a good word to describe how I’d like to be treated if I was going through trauma and distress.



Monday, 15 April 2019

Emerging Proud in Powys


by guest author Caroline Andrews

On Tuesday 2 April I took the plunge and held a film screening at the Friends' Meeting House here in Llandod. The film? “Emerging Proud: coming out of the Spiritual Closet."

For my whole adult life, I’ve walked a balance of being “here and yet not here”. In the world and yet not of it. Having experienced a prolonged spiritual awakening after the second year in university, yet being treated like I was wrong and ill, I tried to dumb myself down and “fit in”, playing it safe.

A few years later, however, my soul had other ideas and another download of information, energy and spiritual awareness occurred. Once more, I was treated like I was ill and slightly “wrong”, forcibly injected with toxins and locked away, to awaken with my senses deadened and feeling this time like nothing that felt important to me was safe to explore.

A year later I had clawed some light back in to my life and re-gained my confidence though once more experienced a prolonged peak state that landed me one more time in hospital.

This time, I had the support of a loving partner, and a deep knowing inside that this was a spiritual awakening. “One flew over the cuckoo's nest” sprang to mind as I set to have as much fun with the other “inmates” as possible until I managed to set up a tribunal. Luckily I was released before it came to court.

10 years later, I’m showing a screening of a film that speaks volumes about my own journey and the profound times we are living in. People from all over the world speaking about their experiences and how the labels they were given vastly underestimated the value of their profound and revealing life changing experiences. Time after time, we hear from people that validation of their path was the most helpful part of their journey, in opposition to the treatment by the psychiatric system that would dumb down and medicate the person creating invalidation and inner turmoil.

The campaign whose name echoes the film title, Emerging Proud, was started by Katie Mottram, also author of “Mend the Gap”. In her book, Katie shares her own experiences in life, from being a carer in the mental health system to being herself an experiencer, and her realisation that the spiritual aspect of the journey was often overlooked though sometimes the most valuable part of the experience.

I trained with Katie through the organisation Emerging Proud to become an Emerging Kind peer group facilitator. In these peer groups we share from the heart, and listen without judgement. This is a safe space, where there are no labels, just love and acceptance for each other. Last year I ran a group here in Llandrindod Wells for 10 months. There were tears and a lot of laughter and for me a profound sense of home. Having felt so alone for my whole adult life, I had finally found a place to share my experiences without fear of being re-sectioned or ridicule.

Now in its second year, I have created a new peer group, based on the attendees of the film screening and at present, we are full to capacity. If you’d like to join the group, I can keep you on the waiting list. The film itself is worth watching for a life changing feeling of seeing people all around the world experiencing exactly what I did. Check it out for yourself here:



And find out more about Emerging Proud here.

“Times, they are a-changing,” and so should the solutions to our challenges. Emerging Proud supports the growing notion that mental health crisis is in fact an invaluable and life changing experience and with the right support and encouragement we may all come out the other side transformed like the butterfly, spreading our wings to take on a new horizon.


To find out more about Emerging Proud in Powys, contact Caroline by emailing carolinemaryandrews@hotmail.com or ringing 07749 232 366.

Tuesday, 4 July 2017

CRAZYWISE - the Brecon screening


“Crazy…or wise? The traditional wisdom of indigenous cultures often contradicts modern views about a mental health crisis. Is it a ‘calling’ to grow or just a ‘broken brain’? The documentary CRAZYWISE explores what can be learned from people around the world who have turned their psychological crisis into a positive transformative experience.”

On the longest (and probably hottest) day of 2017 I was at The Wellington Hotel in Brecon with PAVO colleagues, community groups, staff from mental health services and individuals to watch this new documentary film by directors Phil Borges and Kevin Tomlinson. The free community screening had been arranged by Avril Meyler of Emerging Paradigms in partnership with PAVO and Brecon community organisations. My colleagues Anne Woods, Philip Moisson and Jane Cooke helped organise the event and also facilitated the open discussion sessions following the screening.



Regular readers of this blog will know that we are keen to promote alternative approaches to looking at mental health distress, asking what has happened to a person who is in mental health crisis rather than concluding that something is wrong with them. So we were delighted to be asked to be involved in the first screening of this groundbreaking, powerful and as it turned out, very moving film, in Powys.

Avril explained in her introduction that she first saw CRAZYWISE at an #EmergingProud event 
in London during Mental Health Awareness Week in May and knew immediately that she wanted to bring it to her local community. (She has written about the Brecon screening on her blog: A Multidimensional Paradigm).  Avril anticipated that the documentary would prompt much interesting discussion, and suggested some of the questions we might ask at our tables once we'd watched the film, such as: “What can we learn from people who have successfully navigated a psychological crisis?” and “Is it time to pay more attention to the psycho/social and spiritual underpinnings of mental health and bring a more balanced approach to mental health care?”

Phil Moisson, Anne Woods, Avril Meyler, Jane Cooke, Andy Hall, Paul Stephens
And so to the film. “CRAZYWISE follows two young Americans diagnosed with “mental illness.” Adam, 27, suffers devastating side effects from medications before embracing meditation in hopes of recovery. Ekhaya, 32, survives childhood molestation and several suicide attempts before spiritual training to become a traditional South African healer gives her suffering meaning and brings a deeper purpose to her life.” 

Interspersed with Adam and Ekhaya’s stories are interviews with mental health professionals and indigenous peoples, and the director Phil Borges discovers: “a growing movement of professionals and psychiatric survivors who demand alternative treatments that focus on recovery, nurturing social connections, and finding meaning.” 

In the early scenes of CRAZYWISE, human-rights photographer and filmmaker Phil tells us what inspired him to start filming. After many years documenting indigenous cultures, he realised that their interpretation of “psychotic” symptoms as a journey of spiritual transformation is completely different to the way that psychosis is regarded in the West and a deep curiosity drew him to find out more. In an interview with Frontier Therapy magazine Phil describes changing his mind about “mental illness” – which he used to think was caused by a “chemical inbalance in the brain. “I now look at it as a natural transformational process waiting to happen. Unfortunately our culture does not look at it this way and so there is little support in helping the individual find meaning and purpose in their suffering."


Round table discussions

The film prompted some really thought-provoking discussion throughout the remainder of the day. Without divulging personal stories, I picked up on several key themes: 

The not so good…
  • Questions about what has happened to you are never asked.
  • In Powys the first port of call for someone in mental health distress is the GP – so people are set on to the medical route right at the start.
  • If a GP was amenable to other options what would they offer? What is the alternative in Powys?
  • It is horrendous trying to fight for help if labelled as an “alcoholic” or “nicotine-dependent.”
  • People are labelled as having a problem when often the problem is external, such as work-related stress.
  • If you have a problem outside Mon-Fri 9 – 5 you are stuck mental health-wise.
  • Some people feared that if they referred to a spiritual experience that this would just add to their medical diagnosis.
  • Patients with a physical illness are trusted to understand and monitor their medication. This happens far less with mental “illness”. 
  • Being challenging is not an illness.
  • Doctors will always be in control as they prescribe the medication.
Jane Cooke, Senior Officer Mental Health at PAVO and Tania Dolley, Psychologist at Powys Teaching Health Board

The opportunities for different approaches…
  • “When I am in emotional crisis I want a community that welcomes the symptoms and says it will be alright. That is so healing.”
  • “This could be a half-way house that accepts me for who I am. I don’t mind if the people there are peers or professionals, so long as they are the right people. This would save money as it would prevent long-term issues from developing and also possibly hospitalisation.”
  • There should be a support system for people using services to empower them to question treatments and medication.
  • In the film the professionals who supported The Diagnostic and Statistical Manual (DSM) are now against it. Some people in the system are more open-minded.
  • "It would be nice to present a “basket of fruit” to the world – what works for one person is different for another. Someone might want a peach one day and a nectarine the next."

Andy Hall edits One in Four three times a year, available from Brecon & District Mind

And other questions and comments…
  • Several people were keen to find out more about shamanism. (In some cultures a psychotic experience is viewed as a calling to become a healer or shaman). Others pointed out that a spiritual way is different for everybody – it could be a drumming session…. it could be being a mother….
  • Medication works for some people and sometimes it can be helpful. In the film this was also stated.
  • There are no psychiatrists or community psychiatric nurses in the room today. Where are they? We want them to hear our story.
  • Are the professionals the community leaders of our time in terms of spiritual growth and connection? Or can it just be about grassroots social connections?
The hope now is that we can acquire the licence to show CRAZYWISE to many more audiences throughout Powys, so that further discussion can be stimulated and ideas gathered about changing the response to mental distress in the county.
What do you think? Would you be interested to see the film? If so, get in touch, or leave a comment below. You may also like to find out more about Open Dialogue, the Spiritual Crisis Network, and the Hearing Voices Network.



Whilst the film was running I was transfixed. It’s compelling stuff. I lifted my pen only once to write down a quote from mental health advocate and counsellor Will Hall who said: “The Diagnostic and Statistical Manual is basically a sophisticated way of not listening to people...” 

But as the film reinforced over and over again – people just want to be listened to no matter what they're going through.

Tuesday, 19 August 2014

Unconventional Wisdom: Beyond Medical - The Debate Continues (I hope) ...


Leaving PAVO and Ventures New


After 5 years of working within PAVO’s Mental Health Team and 10 years of working in the “mental health” field, in July 2014 I decided it was time to try and make my living in a different way, one that was outside of the mental health system and outside of the public sector.

I am opening a Micropub in Llandrindod Wells which is a whole other story (… one of craft real ales, conversation, bringing people together and other lovely things …). If you are interested you can find out more on twitter, look for @arvonales.

So why I am still writing a “mental health” blog?

Some of you may already be aware of my views on our mental health system and the ideas underpinning it from my previous posts. You can find some of these here. If so, you will know that they do not align with the conventional mainstream wisdom on this topic and although I am no longer working within mental health, my quest to find ways of highlighting the “beyond medical” debate to professionals, the public, people in contact with mental health services and those close to them continues.

I believe that basing our mental health system and public awareness campaigns on the illogical idea of “mental illness” is doing much more harm than good. This belief comes from personal and professional experience of mental health and my own 30 year quest for the truth about my brother’s “mental illness”.


“Here I stand. I can do no other.” Martin Luther

What’s the debate? The myth of mental illness and the harm that it is doing

I believe that the concept of “mental illness” is incorrect and illogical. That the thoughts, feelings and actions that we categorise as “symptoms” of “mental illness” are not that. That these thoughts, feelings and actions are instead a natural and normal response to the difficult things that happen to us.

I believe that basing our mental health services, policies, laws, treatments, responses and public health campaigns on this bad idea is leading to much more harm than good. That allowing this bad idea to underpin all of these things means that we start from the wrong place when trying to help ourselves and others.

That is a place that largely remains in the “let’s manage the symptoms” arena rather than one that asks “can we make sense of this”. A place that doesn’t always allow us to look first for any medical reasons for these symptoms (you can read my blogs on organic reasons for “depression” here and “psychosis” here).

“Language shapes the way we think, and determines what we can think about.”  
Benjamin Lee Whorf

What do I propose?

Well one thing is that I commit to continuing to write blog posts that highlight “What’s Hot?” in the beyond medical debate (…What’s Hot ?!?!?! - me trying to make the topic as interesting as I can).

I will also continue to use my personal twitter account @powysmh to present evidence that shows the invalidity of the idea of “mental illness” and that highlights the harm that this idea is having.

I know that I am not the only one in Wales wanting to see awareness of this debate raised and I would love to hear from you about what you are doing and any ideas you have about what else you think we could do.

So now it is up to you. Read or don’t read the blog. Follow me on twitter. Talk to me, contact me, challenge me, offer me words of support. I leave it to you.

Beyond Medical Debate. Where would I start from now?

As this is the first of these “round-ups” I want to start by highlighting just 2 links that are in my opinion a great place to start if you want to find out more about this debate. I hope you find them interesting and useful:

The Council for Evidence-based Psychiatry (CEP)   @cep_uk
  • The purpose: To reduce psychiatric harm by communicating the latest evidence to policymakers and practitioners, by sharing the testimony of those who have been harmed, and by supporting research into areas where evidence is lacking.
  • Where to start: Try the tabs at the top for a series of short videos on “Unrecognised Facts” and “Recovery Story”. Also find out more about the members of CEP here. One member, psychiatrist Sami Timimi, talked at a conference I organised earlier this year in Powys, you can find out more about this here.
Behaviorism and Mental Health    @BigPhilHickey 

An alternative perspective on mental disorders by Philip Hickey PhD.
  • The purpose: To provide a forum where current practices and ideas in the mental health field can be critically examined and discussed.
  • Where to start: Absolutely anywhere, this is a great site for exploring this debate. On the home page you will see a list of his posts and in my opinion they are all insightful, logical, thorough and interesting. There is a Tell Your Story page here and the Moderation Policy here is well worth a read.
Beyond Medical Debate. What’s Hot This Month? 


Contact me (… fingers crossed …)? Laura Gallagher


To find out more you can follow me on twitter @powysmh.

You can comment below and I will respond.

You can email me at powysmentalhealth@gmail.com

Or find me on facebook here.

Fingers crossed that other people out there are also interested in finding out more about this this debate….