The new normal for our Powys mental health charities

 

Back in July we had a really helpful roundup from our mental health charities in Powys, to find out how they had been innovating to ensure continued service provision for their members since the start of the Covid-19 pandemic.

We recently met with them again, and decided this would be perfect opportunity to do a further update to share more information about their services in this strange and challenging year.

Here is what they had to tell us about what’s been happening for them lately. 

Please note that this update was made earlier in December, before the Welsh Government's latest announcements about new Covid-19 restrictions were announced for Wales.

Ystradgynlais Mind

Ystradgynlais Mind has migrated the majority of its service to online platforms and telephone support. We have increased our social media presence. The result of expanding our social media presence has been the ability to engage with and support many more people, particularly young people. 

Gareth James & Iwan Evans raised £2000 for Ystradgynlais Mind on a running challenge

The impact of digital exclusion has become more apparent to us since the onset of Covid 19. We have attempted to overcome the impact of digital exclusion by the provision of some IT equipment via purchases made through ‘Computer Recyclers’ plus issuing repurposed mobile phones etc. We have also increased our one to one telephone support to those who are digitally excluded and provided pre-arranged ‘welfare checks’ for those who are not receiving the same level of support previously delivered via statutory services. 

Perinatal support is now being delivered via webinar alongside one to one counselling support and peer support groups. We have also extended perinatal support to partners. Counselling provision has been increased by 75% to address the increasing demand for counselling. Referrals to blended online SilverCloud CBT have increased, the practitioner is currently holding a waiting list. Active Monitoring has been able to fill the gaps left by blended counselling through the provision of printed supporting materials and telephone support - this service is operating at capacity. 

After receiving Zoom training a member is able to access online counselling

Yoga and Mindful meditation has all been migrated to remote delivery. These sessions are proving popular and participation has increased by 150%. Peer supporters are now facilitating twice weekly online/phone support sessions. This group is growing in size and service users involved are supporting one another to form their own social support networks, reducing social isolation and increasing their own personal resilience.

Brecon & District Mind

Some of the issues that have come up for Brecon & District Mind recently include employment, children with anxiety around school or Covid itself, and a lot of people are keen for the drop-in to restart, so we are doing that now ensuring people making appointments to attend. Also a lot of people are becoming agoraphobic because of the rules and regulations. And there is some worry about Christmas and issues around that.

We have returned to face to face meetings outside and walk & talk sessions, but had taken the decision not to open the centre before the firebreak lockdown. We are going back to 1:1 sessions (as well as the drop-in) by appointment only. We will continue our schools work with children and young people, ensuring that this is done safely. We are doing a lot of family work and safeguarding and are looking into extra/crisis support in the evenings. A recent survey has shown that people have appreciated the support they have received from us in the last year with comments like: “Don’t know what I would have done without (Brecon) Mind’s support”, “excellent service”, brilliant counselling."

Unfortunately as we speak the guidelines and regulations around Covid have changed yet again so we are now having to revert to remote services until the New Year when the Welsh Government will be reviewing the situation. There will be staff available over the Christmas period to offer support by phone should anyone need this. Our centre is now closed and staff mostly working from home.

The Green Minds project is continuing and Brecon Cathedral is funding this for 1 day a week. Our Mums Matter project is also continuing with a new Zoom course starting in January. Our blended work in partnership with the online SilverCloud CBT is quieter. However, we are doing more wellbeing calls by phone and having more referrals into that. A survey we did shows that people prefer 1:1/ face-to-face support and so we are busy with that.

We have been fortunate in securing funding to employ our first Digital Technical Officer who is helping us develop our digital service offering and upskilling staff and service users where needed.

Mid and North Powys Mind

Here at Mid and North Powys Mind we are seeing very high levels of demand overall across all of our services, including more complex cases requiring more time for our support workers. We expect this trend to continue through to Spring 2021.

An episode of THRIVE on Facebook

The team is providing a blended service of both online work, including blended online SilverCloud CBT, counselling and support work, as well as still providing face-to-face meetings as and when needed. This blended approach means we can still meet the high level of demand as phone sessions are usually shorter and do not require time for travel, whereas the face-to-face sessions are there for those clients who struggle with the remote support.

We had our first day back working in Builth and Llandrindod High Schools to offer support to students aged 16 and over - this support had been halted in January. We’re going in with a really open mind as obviously things have changed since the last time we were there. It’s a very different environment now and we are taking it slowly, working with the schools and students to co-produce the support for the greatest impact. We still have 2 weekly online youth group sessions that are well attended.

We were lucky to secure some space in the Armoury, thanks to Ponthafren Association, and have started to run our first face-to-face Mums Matter course in Welshpool. Seven mums attended, which is our highest number since lockdown started. Two more face-to-face Mums Matter courses will be running in January/February.

Our Outreach group in Knighton used to meet every week on a Friday, but has been operating via telephone support with help from dedicated volunteers since the first lockdown. Now with the help of Impelo (a local charity using dance to transform people's lives) we are hoping to run one face-to-face dance session a month in Knighton, giving group members a chance to meet in a safe and supportive environment.

In Llandrindod our Tai-Chi group is meeting again in Celf after not meeting for a time and briefly being held in the Rock Park. This group is going well and is supported by volunteers and a trained tutor.

Since March we have supported over 500 people through face to face or phone meetings. Live broadcasts have continued to be very popular. Our digital content on Facebook and Youtube has been well received and we have been producing videos on Mindfulness, Tai Chi, THRIVE tips and other wellbeing activities. On Facebook we have had over 68,000 minutes of our videos watched since March and have now reached over 30,000 people.

We continue to offer remote training via Zoom, this has been a huge success, with many people previously unable to attend due to travel now being able to access the support.

Ponthafren Association

At Ponthafren Association we have been continuing to provide our services. Face-to-face this is appointment-based only to reduce our numbers in the buildings. Zoom has become the go-to for most things which has been really positive. Two Zoom groups, crochet and afternoon tea, have been very popular. Plus the videos on how to make Christmas decorations. Life skills courses have been popular and there has been strong demand for anger management courses. We continue to see an increase for all our services whilst working in partnership with others such as the Newtown Network.

Lockdown has created the opportunity for some people to reflect and explore their gender and we are currently supporting a number of people around this.

The Armoury, our new building in Welshpool, is preparing to open which is great. The construction company Paveways provided free labour and materials to refurbish the building through their charity’s arm, and they have been fantastic. You can watch a video of the work here. 

It’s been truly magical how the community has supported Ponthafren to support others. Rory raised over £800 as Santa on a bike and Cathy Beech released a record to raise funds for us.

You can find out more about the services these organisations are offering on their websites (linked above) or Facebook pages where you will also see details of their Christmas and New Year opening times.

Wishing everyone a relaxing Christmas and a peaceful New Year, 

and hoping for brighter times in 2021!

Harnessing the power of music - a dementia project

Steff Griffiths is the Local Coordinator in Mid Wales for the music and dementia charity Playlist for Life.

The charity was founded in 2013 by writer and broadcaster Sally Magnusson after the death of her mother, Mamie, who had dementia. The charity’s vision is that everyone living with dementia has a unique, personal playlist and everyone who loves or cares for them knows how to use it.

I caught up with Steff on Zoom recently to find out more about this amazing work.

What is your role with Playlist for Life and which area do you cover?

My role as a local coordinator for Playlist is basically to get out and about in the community and tell everybody how helpful music is in the lives of people living with dementia. So before Covid I would go and visit dementia cafes, dementia groups, carers organisations – basically any organisation that deals with people either directly living with dementia or their carers, their families, and people who support them. And I talk to them about the way music affects the brain and the way music brings back memories and then show them how to build personal music playlists.

I cover the whole of Wales north of Cardiff and the Valleys. I've a colleague in Cardiff but otherwise I'm everywhere!

What brought you to work in this field?

I’ve always found it very interesting and I have experience in my family of people living with dementia and had already realised how much music helps. So when I saw this lottery-funded post I thought I've got to do this job. It's a simple tool that really helps people. We've been based in Wales about a year now. The charity started originally in Scotland and it’s spread to London, the Southwest of England and now Wales. 

How does Playlist for Life work in brief?

Basically we give organisations and groups step by step help so that they you can choose songs that have memories attached to them and put them into a playlist for people living with dementia to listen to. You can create playlists in a number of ways, for example on YouTube, and then email them to people if they've got a phone or laptop or an iPad. It's free. When a song is played the memory comes back and you can talk with people about when they were children, when they married, when they used to go to gigs, and all the songs that remind them of Christmas, holidays or celebrations from their past.

We have lots of case studies of people living with dementia who are very withdrawn. But then when certain songs with memories attached are played, they get up and sing and dance. They play the piano, they will remember seeing Pink Floyd in concert or perhaps the Rolling Stones. And I think – wow, that's cool. But it's just the power of music that's personal to you which really does bring people back to the present and it helps people connect.

If you're caring for people who can communicate with you it's very easy to build a playlist because you can have a chat about the songs from the past. If they're not able to communicate those memories to you we also provide training called Music Detectives. It's all the tips and the tricks about how to build a playlist for somebody who has difficulty communicating and remembering their special songs. There’s also a Mini Music Detectives for children to help as well so they can work with their grandparents or go with their school into a care home (although not at the moment obviously).

Why is music such a powerful force for people living with dementia?

It's the memory. When you listen to music, you're hearing some of the melody, the words, the tone and the pitch and this connects parts of the brain that don't normally connect together for people living with dementia. It can fire off a lot of the neurons in the brain. You don't have to listen to professional music you can just sing the song. I spend a lot of time singing (I can't sing very well!) on the phone to people. Over the summer, when I was working with the Alzheimer’s Society creating personal playlist for people, Neil Diamond’s bank balance must have grown exponentially because everybody liked Sweet Caroline and it was on a lot of Playlists!

The Playlist for Life website is open to everyone and there are loads of downloadable resources on there. Create the Soundtrack to your Life is a popular one. It's a little booklet and it's where you write the song and the associated memory and then the booklet goes with the person if they go into respite for example. So staff know that the song “Sweet Caroline” has this memory associated with it, then the conversation starts and it builds that trust and bit of rapport. We have case studies on the website but you have to get your tissues ready to watch some of the video stories because it can be quite emotional, even though it’s a happy story.

How can creating a personal playlist impact on the emotional wellbeing of someone living with dementia?

Well, we have an example of a lady who is very withdrawn. But when she plays the piano she’s very engaged with the music and her audience. She's engaging with people which ordinarily she wouldn't do if the music wasn't there. It's not a panacea. It's not going to cure people but it really works with some people and it can help people a lot.

If people living with dementia aren’t able to reminisce in ways like this, what can happen to them?

It's probably a very lonely existence. People can be very withdrawn and anxious, and can't connect with the outside world. They get very upset and they don't know why.

There's a lovely video featuring Harry and Margaret on our website showing how they connect via music. You can see on Margaret’s face - she's got her husband back. They talk about when they used to go dancing and that's when they met. He knows the words to songs from the 1950s yet ordinarily he doesn't remember things. It's that connection which the music helps with. 

How has the Covid pandemic impacted on your work?

Lots - because the job is very face-to-face. We go out and talk to organisations and show them all these resources for creating playlists. But of course nothing's face to face now. So we've been holding webinars for people to sign up to and we've been doing music detective training over Zoom.

We've also been working with the Alzheimer’s Society creating playlists for people who can't get out and about as their usual meeting places have been closed. And it's been online for the past nine months. We’re also doing whatever we can to spread the word about the charity and the resources so that hopefully, in six months’ time, when all this hopefully will go away, people will know what the charity can offer them.

One example was when we made a playlist for a lady in her 90s and her son-in-law was telling me “we know exactly what song is playing because even though she's got headphones on she's singing at the top of her voice!”

Which other organisations do you work closely with in Powys, a very rural county?

So far Dementia Matters in Powys and yourselves. It’s early days so far. The community councils are also keen to get involved as well. So if there are any organisations in the area interested in using music to help people living with dementia, please get in touch.

Tell us what a “dementia friendly Powys” looks like to you personally

It's about people having the knowledge of what dementia is and understanding the many different types of dementia. Then knowing how best we can support people living with dementia, and their carers, and their families. So it's all about knowledge. It's about using all of the tools that we've got available to help and to support people. And everyone having their own personal music playlist, of course. 

What are the main challenges of the role?

I made the mistake early on when I started the job of sending out 50 emails in one day to all these organisations to say hello. I had about 36 of them come back within a day saying yes, we want to meet you and find out more. So keeping up with demand was the biggest challenge in the early days.

But during the past few months the challenge has actually being the technology side of things. We've got some lovely organisations that I met before lockdown that are not able to use technology very well. So they’re waiting to return to face-to-face before engaging with me again. So, it's tough now getting to the grassroots’ groups.

And also the need to diet from eating all those cakes, when we were meeting up, has been a real challenge!

Tell us about some of the most rewarding work you have done at Playlist for Life so far

It's definitely been creating playlists for people. We have such a laugh! One couple were having a disco in the garden with a little MP3 player of all the personal music we gave them. The gentleman had the story of his life turned into his playlist. It was a fantastic playlist.

Another highlight was running Music Detective training courses with colleges. We trained 60 - 70 of a college’s access students in the Music Detectives’ work – it’s been great to have that opportunity.

When you are not working for Playlist for Life, how do you enjoy spending your time?

I love walking and cycling. I'm an out-and-about person. I love to travel abroad as well. During Covid I have found so many new parks and places to go locally that I never would have thought about before. That’s been great. 

If you want to find out more about Playlist for Life you can contact Steff by emailing: steff@playlistforlife.org.uk or ring 07712 273 946.