Tuesday 21 January 2020

Sharing power - in the planning and reviewing of services


Just before Christmas 2019 I attended this training event in Llandrindod run by my two Participation Officer colleagues – Owen Griffkin (Mental Health - above) and Andrew Davies (Health & Wellbeing - below).

The aim of the day was to build the confidence, knowledge and skills of participants, some of whom were already volunteering as citizen or individual reps, so that they could effectively participate in the planning and reviewing of services with public bodies. Citizen reps volunteer their time, energy and passion to make a difference for others and to the services we receive, and are helping influence change at local, regional and national levels.

Some of the participants are citizen reps on the Powys Mental Health Planning & Development Board, whilst others regularly sit on the Powys Regional Partnership Board.

Setting ground rules for the day
The key learning of the day was around: 
  • Communicating confidently and effectively in meetings.
  • Knowing where to access relevant information.
  • Better understanding the process and procedures involved.
  • Better understanding the public bodies involved.
As people introduced themselves at the start of the day it was really interesting to hear the views of those in contact with services, and others who had been citizen reps for some time already:

“Although organisations are individually very good, together they shall never meet.”

“I like to become a thorn in people’s sides. I enjoy arguing the point although I can accept both ways. A 360 degree view of services is so much better.”


It’s not possible to cover the full extent of the training in a short blog post, so I shall just highlight some of the particularly interesting discussions which took place on the day.


Representing other people

As a citizen rep you are an equal partner with other professionals in the room - you are an expert by experience. But how do you gain the experience of other people and take their stories to a partnership board?

One of the reps spoke about how he represents his own experience as a carer, but also takes stories with him from local carers’ groups that he attends. “You need to be mindful for it not to be just about yourself but to cast the net and make the representation whole. You are in effect a Citizen Rep (representing a group of people with a common interest) but also a Representative Citizen (giving your own opinions)." 

Another participant said: “It’s really hard to put yourself to one side. Sometimes you might be putting a viewpoint forward that you don’t believe in. It’s about delivering it in way that doesn’t put people off, or bore people, or become too personal.” There are some very polarizing issues about the medicalisation of mental health, for example, but it is important for a rep to balance any views s/he may have and give the other side as well.


Understanding other people’s context

Another experienced citizen rep pointed out that certain things cannot change. 

“There is no point banging your head against a brick wall that can only be changed from the top down.”


When things don’t go well – and when they do

Sometimes it can be easy to ask – “why are we here if we don’t have any influence?” It was felt that some meetings were a waste of time, and only “tick box” exercises. “Sometimes the public body will just move on to the next item on the agenda as if we have not spoken. We have been invited to speak, but it sometimes feels just so that they can tick that box.”

Someone representing a local charity described how it took her three years to be heard within one public body. But eventually her persistence paid off, and the organisation was finally able to achieve some funding for a much needed project.

It was, though, also agreed that sometimes staff within an organisation may also be struggling with the slow rate of change – but sometimes the decision making process, and the accountability attached to it, require that change to go through and be agreed by many different committees.

New reps often have very high expectations in the early days, but these need to be managed from the start.

“Don’t promise the earth. It’s the small steps that are important. And publicising the success stories.”


You said, we did

Everyone agreed on the value of prompt feedback from the boards about progress. “Even if that is – we’re still driving this forward but we haven’t got anywhere yet.” Otherwise there is an understandable tendency for people to think – “what’s the point?”


The mock meeting

In the afternoon we were pleased to welcome our former colleague Freda Lacey, now Partnership Manager Mental Health at Powys Teaching Health Board, to chair a mock meeting designed to put into practice all the learning from earlier in the day. It turned out to be an extremely interesting and valuable exercise.

All those attending agreed that they had benefitted hugely from the day, both from the learning and the opportunity also to network with others who had a similar role.


And finally…

Would you be interested in joining these citizen reps to take grass-root views and opinions to local board meetings where service providers can find out what is working and what needs to change? For further information about becoming a citizen rep, in the field of mental health or health and social care, just get in touch with us by emailing mentalhealth@pavo.org.uk or ringing 01597 822191.

4 comments:

  1. Correct me if I'm wrong, but your reps don't gather issues from other service users or carers very well, and, why would they, because they're not listened to at the Partnership Board meetings.

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  2. Hello. I manage the two PAVO participation officers who work with reps to the Regional Partnership Board, the Mental Health Planning and Partnership Development Board and the Area Partnership Board (Substance Misuse).
    There are mechanisms in place for gathering service user views, such as Patients' Council sessions and local sessions to gather views on specific subjects. Mental Health reps initiated and carried out a service user survey which was completed last year.
    Could gathering of views be better? Of course, but the citizen reps are volunteers and we have to be mindful of their time and other commitments. Several issues have received much greater recognition because of the input of PAVO reps, such as the changes to the Blue Badge renewals in Powys and the championing of self harm awareness. Both of these have been raised at a national level, after being discussed in Powys meetings. Another rep has in depth knowledge and experience in eating disorders and has been tireless in raising awareness. You can read more about it in another blog post- http://powysmentalhealth.blogspot.com/2019/12/eating-disorders-services-review-in.html
    Reps are supported by attending a pre-board meeting with a PAVO officer and someone from the partnership board, so that they have a chance to get familiar withe the issues coming up and to talk together about how those issues affect service users.
    The Health and Well-being team at PAVO are keen to improve the impact that reps are able to have. Making sure that they are in regular contact with other service users is something that we encourage and discuss.
    If you are interested in being a rep yourself, please contact Owen or Andrew, who can talk to you about the role.

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    Replies
    1. I'm certainly not interested in volunteering in this role-- I'd say the representation of service user and carer views can't be done by volunteers -- as the amount of work needed to collate and decipher the full range of service user and carer positions is enormous, and far too important to be left to volunteers.
      I'd be interested to hear the results of your survey and wonder why this isn't a regular feature. Is there a reason why you don't regularly ask other service users for their opinions?? PAVO and their reps seem to promote individuals to give their own views on public issues around public services.
      Realistically, you're up against it in that role, given that under current NHS practice there is no space to ask for patient opinion.
      In contrast, when I buy insurance or contact my mobile phone company, they ask for feedback on every single interaction I have with them.
      In Mental Health, nobody asks the patient what they think and if the patient offers something staff don't like they dismiss them as a nutter and point some or other diagnosis.
      I wish you luck, but in all honesty, if you carry out a single day of that job without knowing the absolute despair felt by significant numbers of long term patients of the mental health system- then you're doing us a dis-service.

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  3. Dear Anonymous, You raise some important points. We are always keen to improve feedback via reps to the Health Board, so I will feed your comments in to our planning. Thank you for taking the time to comment so thoroughly. If you wish to speak to a rep or one of the PAVO participation officers, so that your experiences of mental health services are known and able to be fed into board meetings in an anonymous form, please contact Owen or Andrew on mentalhealth@pavo.org.uk or by ringing 01597 822191

    ReplyDelete